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Centre for Technology, Ethics & Law in Society

Publications

Books 

R. Brownswird, E. Scotford, and K.Yeung (eds), The Oxford Handbook on Law, Regulation and Technology (Oxford: Oxford University Press) (under contract and in preparation)

Barbara Prainsack, Silke Schicktanz, and Gabriele Werner-Felmayer (2015) (eds): Genetics as Social Practice. Farnham: Ashgate.

Lucivero F. and Vedder A. (2013) (eds.) Beyond Therapy v. Enhancement. Multidisciplinary analyses of a heated debate, Pisa University Press

R. Brownsword and Morag Goodwin, Law and the Technologies of the Twenty-First Century (Cambridge: Cambridge University Press, 2012)

Helena Machado, and Barbara Prainsack (2012): Tracing Technologies: Prisoners’ Views in the Era of CSI. Farnham: Ashgate.

Richard Hindmarsh, and Barbara Prainsack (eds) (2010). Genetic Suspects: Global Governance of Forensic DNA Profiling and Databasing. Cambridge, UK: Cambridge University Press.

Roger Brownsword, Rights, Regulation and the Technological Revolution (Oxford: Oxford University Press, 2008)

Roger Brownsword and Karen Yeung (eds), Regulating Technologies (Oxford: Hart, 2008)

Chapters in books

2015

D. Beyleveld and R. BROWNSWORD, “Research Participants and the Right to be Informed”, in Pamela R. Ferguson and Graeme T. Laurie (eds), Inspiring a Medico-Legal Revolution (Essays in Honour of Sheila McLean) (Farnham: Ashgate, 2015) 173-188

R. BROWNSWORD, “Big Biobanks: Three Major Governance Challenges and Some Mini-Constitutional Solutions” in Daniel Stretch and Marcel Mertz (eds), Ethics in Clinical and Translational Research—From Theory to Practice, from Practice to Theory (Springer, 2015)

R. BROWNSWORD, “Field, Frame and Focus: Methodological Issues in the New Legal World” in Rob van Gestel, Hans Micklitz, and Ed Rubin (eds), Rethinking Legal Scholarship (Cambridge: Cambridge University Press, 2015)

2014

R. BROWNSWORD, “Crimes Against Humanity, Simple Crime, and Human Dignity” in  Britta van Beers, Luigi Corrias, and Wouter Werner (eds), Humanity across International Law and Biolaw (Cambridge: Cambridge University Press, 2014) 87-114

R. BROWNSWORD, “Comparatively Speaking: ‘Law in its Regulatory Environment’” in Maurice Adams and Dirk Heirbaut (eds), The Method and Culture of Comparative Law (Festschrift for Mark van Hoecke) (Oxford: Hart, 2014) 189-205

R. BROWNSWORD, “Regulatory Coherence—A European Challenge” in Kai Purnhagen and Peter Rott (eds), Varieties of European Economic Law and Regulation: Essays in Honour of Hans Micklitz (Springer, 2014) 235-258

R. BROWNSWORD, “Patents and Intellectual Property Rights” in Darrel Moellendorf and Heather Widdows (eds), The Handbook of Global Ethics (London: Routledge, 2014) 354-367 (Ch 26)

2013

R. BROWNSWORD, “Regulating Biobanks: Another Triple Bottom Line” in Giovanni Pascuzzi, Umberto Izzo, and Matteo Macilotti (eds), Comparative Issues in the Governance of Research Biobanks (Heidelberg: Springer, 2013) 41-62

R. BROWNSWORD, “Menschenwürde und Nanotechnologie: Zwei Perspektiven, zahlreiche Ethiken (Human Dignity and Nanotechnologies: Two Frames, Many Ethics)” German version in Jan C Joerden, Eric Hilgendorf, and Felix Thiele, Menschenwürde und Medizin (Berlin: Duncker and Humblot, 2013) 1019-1032

R. BROWNSWORD, "Criminal Law, Regulatory Frameworks and Public Health" in A.M. Viens, John Coggon, and Anthony S. Kessel (eds) Criminal Law, Philosophy and Public Health Practice (Cambridge: Cambridge University Press, 2013) 19-41

R. BROWNSWORD, “Human Dignity, Human Rights, and Simply Trying to Do the Right Thing” in Christopher McCrudden (ed), Understanding Human Dignity (Proceedings of the British Academy 192) (Oxford: The British Academy and Oxford University Press, 2013) 345-358

Lucivero F (2013) ‘The promises of emerging diagnostics: from scientists’ visions to the lab bench and back”, in Burg S. and Swierstra T. (eds.), Ethics on the laboratory floor, Palgrave-MacMillan

Lucivero F and Dalibert L (2013) “Should I trust my gut feelings or keep them at a distance? A prospective analysis of point-of-care diagnostics practices” In Leenes R. and Kosta E. Bridging Distance in Technology and Regulation, Wolf Legal Publishers: 151-ff

2012

R. BROWNSWORD, “Regulating Brain Imaging: Questions of Privacy and Informed Consent” in Sarah J.L. Edwards, Sarah Richmond, and Geraint Rees (eds), I Know What You Are Thinking: Brain Imaging and Mental Privacy (Oxford: Oxford University Press, 2012) 223-244

R. BROWNSWORD, “A Simple Regulatory Principle for Performance-Enhancing Technologies: Too Good to be True?” in Jan Tolleneer, Pieter Bonte, and Sigird Sterckx (eds) Athletic Enhancement, Human Nature and Ethics: Threats and Opportunities of Doping Technologies (Springer, 2012) 291-310

The societal Impact of synthetic biology. Lentzos, F., Cockerton, C., Finlay, S., Hamilton, A., Zhang, J. & Rose, N. 2012. Synthetic biology: a primer. Freemont, P. S. & Kitney, R. I. (eds.). Singapore: World Scientific.

2011

R. BROWNSWORD, “Autonomy, Delegation, and Responsibility: Agents in Autonomic Computing Environments” in Mireille Hildebrandt and Antoinette Rouvroy (eds), Autonomic Computing and Transformations of Human Agency (London: Routledge, 2011) 64-84

R. BROWNSWORD, “Biobanks, Rights, and the Regulatory Environment” in Carla Faralli and Matteo Galletti (eds). Biobanche e informazioni genetiche: Problemi etici e giuridici (Bologna: CIRSFID; and Rome: Aracne editrice, 2011) 85-111

2010

R. BROWNSWORD, “The Age of Regulatory Governance and Nanotechnologies” in G. Hodge, D.M. Bowman, and A.D. Maynard (eds), International Handbook on Regulating Nanotechnologies (Cheltenham: Edward Elgar, 2010) 60-80

2009

Deryck Beyleveld and Roger Brownsword, “Complex Technologies, Complex Calculations: uses and Abuses of Precautionary Reasoning in Law” in Paul Sollie and Marcus Düwell (eds), Evaluating New Technologies (Dordrecht: Springer, 2009)

D. Beyleveld and R. BROWNSWORD, “Complex Technology, Complex Calculations: Uses and Abuses of Precautionary Reasoning in Law” in Marcus Duwell and Paul Sollie (eds), Evaluating New Technologies: Methodological Problems for the Ethical Assessment of Technological Developments (Springer, 2009) 175-190

Roger Brownsword, “Rights, Responsibility and Stewardship: Beyond Consent” in Heather Widdows and Caroline Mullen (eds), The Governance of Genetic Information: Who Decides? (Cambridge: Cambridge University Press, 2009)

Roger Brownsword, “Consent in Data Protection Law: Privacy, Fair Procesing, and Confidentiality” in Serge Gutwirth (ed), Reinventing Data Protection (Dordrecht: Springer, 2009)

R. BROWNSWORD, “Human Dignity, Ethical Pluralism, and the Regulation of Modern Biotechnologies” in Thérèse Murphy (ed), New Technologies and Human Rights (Oxford: OUP, 2009) 19-84

R. BROWNSWORD, “Property in Human Tissue: Triangulating the Issue” in Michael Steinman, Peter Sykora, and Urban Wiesing (eds), Altruism Reconsidered: Exploring New Approaches to Property in Human Tissue (Aldershot: Ashgate, 2009) 93-104

R. BROWNSWORD, “Rights, Responsibility and Stewardship: Beyond Consent” in Heather Widdows and Caroline Mullen (eds), The Governance of Genetic Information: Who Decides?(Cambridge: Cambridge University Press, 2009) 99-125

R. BROWNSWORD, “Consent in Data Protection Law: Privacy, Fair Procesing, and Confidentiality” in Serge Gutwirth, Yves Poullet, Paul de Hert, Cécile de Terwangne and Sjaak Nouwt (eds), Reinventing Data Protection?(Dordrecht: Springer, 2009) 83-110

2008

Roger Brownsword, “Knowing Me, Knowing You¾Profiling, Privacy and the Public Interest” in Mireille Hildebrandt and Serge Gutwirth (eds), Profiling the European Citizen (Dordrecht: Springer, 2008) 345-363

Roger Brownsword, “Human Dignity, Ethical Pluralism, and the Regulation of Modern Biotechnologies” in Thérèse Murphy (ed), New Technologies and Human Rights (Oxford: Oxford University Press, 2008) 19-84

Roger Brownsword, “Bioethics: Bridging from Morality to Law?” in Michael Freeman (ed), Law and Bioethics (Oxford: Oxford University Press, 2008) 12-30 

2007

Rose, N. Genomic susceptibility as an emergent form of life? Genetic testing, identity, and the remit of medicine. 2007. Biomedicine as Culture: Instrumental Practices, Technoscientific Knowledge, and New Modes of Life. LONDON: Routledge, p. 141 – 150. 

Rose, N. Governing the Will in a Neurochemical Age. 2007 Unknown. BASINGSTOKE: Palgrave Macmillan, p. 81 - 99 (ON WILLING SELVES: NEOLIBERAL POLITICS AND THE CHALLENGE OF NEUROSCIENCE)


Articles/Reports

2015

Susan E. Kelly, Tim D. Spector, Lynn F. Cherkas, Barbara Prainsack, Juliette M. Harris (2015). Evaluating the Consent Preferences of UK Research Volunteers for Genetic and Clinical Studies. PLOS ONE 10/3: e0118027. doi:10.1371/journal.pone.0118027.

Sabina Leonelli, Daniel Spichtinger, and Barbara Prainsack (2015). Sticks and carrots: Encouraging open science at its source. GEO: Geography and Environment 1: DOI10.1002/geo2.2. 

Lucivero, F. and Prainsack, B. (2015). The lifestylisation of healthcare? Consumer genomics and mobile health as technologies for healthy lifestyle. Applied & Translational Genomics.  Volume 4, March 2015, Pages 44–49.

Marris, C. (2015). ‘The Construction of Imaginaries of the Public as a Threat to Synthetic Biology.’ Science as Culture, 24(1), 83-98. doi:10.1080/09505431.2014.986320 

Barbara Prainsack (2015). Is personalized medicine different? (Reinscription: The Sequel). Response to Troy Duster. British Journal of Sociology 66/1: 28-35.

2014

Blanke, T., Greenway, G., Pybus, J. and Coté, M. 2014. Mining Mobile Youth Cultures, 2nd IEEE International Conference on Big Data, Washington.

David N. Cooper, Angela Brand, Vita Dolzan, Paolo Fortina, Federica Innocenti, Ming Ta Michael Lee, Milan Macek, Fahd Al-Mulla, Barbara Prainsack, Alessio Squassina, Effy Vayena, Athanassios Vozikis, Marc S. Williams, and George P. Patrinos (2014). Bridging genomics research between developed and developing countries: The Genomic Medicine Alliance. Personalized Medicine 11/7: 615-623. 

Cote, Mark. 2014. Data Motility: Life and Debt Under Big Social DataCultural Studies Review, vol.20, No.2

Friese C., Marris C. (2014). ‘Making De-Extinction Mundane?’ PLoS Biology, 12(3): e1001825. doi:10.1371/journal.pbio.1001825. 

Jeantine E. Lunshof, George M. Church, and Barbara Prainsack (2014). Raw Personal Data: Providing Access. Science 343/6169: 373-374. 

Leenes R. and Lucivero F. (2014) 'Laws on robots, laws by robots, laws in robots: regulating robot behaviour by design' in Law Innovation and Technology

Lentzos, F., Jefferson, C., Marris, C. (2014). ‘The myths (and realities) of synthetic bioweapons.’Bulletin of the Atomic Scientists, Online Analysis posted 18 September 2014

Marris, C.**, Jefferson, C., Lentzos F. (2014). ‘Negotiating the dynamics of uncomfortable knowledge: The case of dual use and synthetic biology.’ BioSocieties, 9(4): 393-420. doi:10.1057/biosoc.2014.32

Jefferson, C., Lentzos, F., Marris, C. (2014). ‘Synthetic biology and biosecurity: challenging the “myths”.’ Frontiers in Public Health 2:115. doi:10.3389/fpubh.2014.00115.

Vural Özdemir, Eugene Kolker, Peter J. Hotez, Sophie Mohin, Barbara Prainsack, Brian Wynne, Effy Vayena, Yavuz Coşkun, Türkay Dereli, Farah Huzair, Alexander Borda-Rodriguez, Nicola L. Bragazzi, Jack Faris, Raj Ramesar, Ambroise Wonkam, Collet Dandara, Bipin Nair, Adrian LLerena, Korav Kılıç, Rekha Jain, Panga Jaipal Reddy, Kishore Gollapalli, Sanjeeva Srivastava and Ilona Kickbusch (2014). Ready to put metadata on the post-2015 development agenda? OMICS 18/1:1-9.

Barbara Prainsack (2014). Personhood and solidarity: What kind of personalized medicine do we want? Personalized Medicine 11/7: 651-657.

Barbara Prainsack (2014). The Powers of Participatory Medicine. PLoS Biology 12/4: e1001837. doi:10.1371/journal.pbio.1001837.

2013

Marris, C. (2013). ‘Synthetic biology’s malaria promises could backfire.’ SciDev.Net, 29 Oct 2013.

Pirni A and Lucivero F. (2013) “The ‘Robotic Divide’ and the framework of recognition: re-articulating the question of fair access to robotic technologies”, Law, Innovation and Technology 

Barbara Prainsack (2013). Let’s get real about virtual: online health is here to stay. Genetics Research 95/4: 111-113.

Barbara Prainsack, and Alena Buyx (2013). A solidarity-based approach to the governance of research biobanks. Medical Law Review 21(1): 71-91. 

Barbara Prainsack, and Effy Vayena (2013). Beyond the clinic: ‘direct-to-consumer’ genomic profiling services and pharmacogenomics. Pharmacogenomics 14/4: 403-412. 

Rose, N. The Human Sciences in a Biological Age. Jan 2013 In : Theory, Culture & Society. 30, 1, p. 3-34 n/a.

Effy Vayena, and Barbara Prainsack (2013). The challenge of personal genomics in Germany. Nature Biotechnology 36: 16-17.

Effy Vayena, and Barbara Prainsack (2013). Regulating Genomics: Time for a broader vision. Science Translational Medicine 5/198: 2-3 (198ed12).

Benjamin W. Spencer, Barbara Prainsack, Dan Rujescu, Ina Giegling, David Collier, Fiona Gaughan, James H. MacCabe, Cathy L. Barr, Engilbert Sigurdsson, Hendrik Stovring, Sara R. Curran (2013). Opening Pandora’s box in the UK: a hypothetical pharmacogenetic test for clozapine. Pharmacogenomics 14/15: 1907-1914.  

2012

Lucivero F (2012), Too good to be true? Appraising expectations for ethical technology assessment, PhD dissertation, University of Twente. Isbn 978-90-365-3389-8. (accepted by Springer for publication in the series International Library of Ethics, Law and Technology). 

Marris, C. & Rose, N. 'Let's get real on synthetic biology: The seeing watchmaker.' 11 Jun 2012 In : New Scientist. 214, 2868, p. 28-29 N/A

Effy Vayena, Elli Gouma, Juerg Streuli, Ernst Hafen, and Barbara Prainsack (2012). Early users of direct-to-consumer genomics in Switzerland. Public Health Genomics 15/6: 352-362. 

Pottage, A., Marris, C. (2012). ‘The cut that makes the part’ (Editorial). BioSocieties, 7(2):103–114. doi:10.1057/biosoc.2012.1 (Special issue on Synthetic Biology and Intellectual Property)

Barbara Prainsack, and Victor Toom (2012). Performing the Union: The Prüm Decision and the European dream. Special Issue on Forensic Cultures in Interdisciplinary Perspective (ed. by Ian Burney, David Kirby, and Neil Pemberton), Studies in the History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 44/1: 71-79.

Torsten Heinemann, Thomas Lemke, and Barbara Prainsack (2012), Risky Profiles: Societal dimensions of forensic uses of DNA technologies. New Genetics & Society 31/3: 249-258. 

Alison Harvey, Angela Brand, Stephen T. Holgate, Lars V. Kristiansen, Hans Lehrach, Aarno Palotie, and Barbara Prainsack (2012). The Future of Technologies for Personalised Medicine. New Biotechnology 29/6: 625-633.

Amade M’Charek, Victor Toom, and Barbara Prainsack (2012). Bracketing off population does not advance ethical reflection on EVCs: A reply to Kayser and Schneider (letter to the editor). Forensic Science International: Genetics 6/1: e16-e17.

2011

Joly, P.-B., Laurent, B., Marris, C., Robinson, D. (2011). Biologie de synthèse : conditions d’un dialogue avec la société. Report for the Science and Society section of the French Ministry of Higher Education and Research, December 2011.

Lucivero F, Swierstra T, Boenink M (2011) “Assessing Expectations: Towards a Toolbox for an Ethics of Emerging Technologies”, NanoEthics, vol. 5, n. 2, 129-141 

Barbara Prainsack (2011). The Power of Prediction: How Personal Genomics became a Policy Challenge. Österreichische Zeitschrift für Politikwissenschaft (Austrian Political Science Journal) 40/4: 401-415 .

Richard Tutton and Barbara Prainsack (2011). Enterprising or Altruistic Selves? Making up Research Subjects in Genetics Research. Sociology of Health and Illness 33/7: 1081-1095. 

Gísli Pálsson, and Barbara Prainsack (2011). Genomic stuff: Governing the (im)matter of life. International Journal of the Commons 5/2: 259-283. 

Barbara Prainsack (2011). Overcoming embryonic exceptionalism? Lessons from analysing human stem cell regulation in Israel. New Genetics & Society 30/3: 267-277.

Barbara Prainsack (2011). Voting with their mice: Personal genome testing and the ‘participatory turn’ in disease research. Accountability in Research 18/3: 132-147.

Zhang, J. Y., Marris, C. & Rose, N. The Transnational Governance of Synthetic Biology: Scientific uncertainty, cross-borderness and the 'art' of governance.  May 2011 London: BIOS Centre, London School of Economics. (BIOS working paper; no. No. 4).

2010

Marie-Andrée Jacob, and Barbara Prainsack (2010). Embryonic Hopes: Controversy, alliance, and reproductive entities in law and the social sciences. An exchange between Marie Fox, Thérèse Murphy, and Sarah Franklin. Debate and Dialogue, Social & Legal Studies 19/4: 497-517. 

Lynn F. Cherkas, Juliette M. Harris, Elana Levinson, Tim D. Spector, and Barbara Prainsack (2010). A Survey of UK Public Interest in Internet-based Personal Genome Testing. PLoS ONE 5/10: e13473.

Marris, C., Rose, N. (2010). ‘Open Engagement: Exploring Public Participation in the Biosciences’ (Editorial). PLoS Biology, 8(11): e1000549. doi:10.1371/journal.pbio.1000549

Barbara Prainsack, and Howard Wolinsky (2010). Direct-to-consumer genome testing: Opportunities for pharmacogenomics research? Editorial, Pharmacogenomics 11/5: 651-655.

Barbara Prainsack, and Victor Toom (2010). The Prüm regime: Situated dis/empowerment in transnational DNA profile exchange. British Journal of Criminology 50: 1117-1135.

Barbara Prainsack, Yael Hashiloni-Dolev, Asa Kasher, and Josef Prainsack (2010). Attitudes of social science students in Israel and Austria towards the Belated Twins scenario: An exploratory study. Public Understanding of Science 19/4: 435-451.

2009

Barbara Prainsack, and Martin Kitzberger (2009). DNA behind bars: “Other” ways of knowing forensic DNA evidence. Social Studies of Science 39/1: 51-79.

R. Brownsword, “Regulating Nanotechnologies: A Matter of Some Uncertainty” Politeia (2009)

2008

Bonneuil, C., Joly, P.-B., Marris, C. (2008). ‘Disentrenching experiment: the construction of GM-crop field trials as a social problem in France.’ Science, Technology and Human Values, 33:201-229. doi:10.1177/0162243907311263

Roger Brownsword, “Regulating Nanomedicine—The Smallest of Our Concerns” (2008) 2 Nanoethics 73-86

R. BROWNSWORD, A. Cermak, R. Chaisson, M.D. Clayman, P.B. Corr, S. DeCharney, C. Grady, E.S. Higgs, N.K. Kumar, R. Loe, M. Merritt, M. Molyneux, B. Petros, H.S. Richardson, and J. Sugarman, “The Ancillary Care Obligations of Medical Researchers Working in Developing Countries” PLOS Medicine (2008)

Marris, C., Joly, P.-B., Rip, A. (2008). ‘Interactive Technology Assessment in the Real World: dual dynamics in an iTA exercise on genetically modified vines.’ Science, Technology and Human Values, 33:77-100. doi:10.1177/0162243907306195

Rose, N. Race, Risk and Medicine in the Age of 'Your Own Personal Genome'. Dec 2008 In : BioSocieties. 3, 4, p. 423 - 439 n/a

Karen Yeung, “Presentational Management and the Pursuit of Regulatory Legitimacy: A Comparative Study of Competition and Consumer Agencies in the United Kingdom and Australia” (2008) Public Administration 

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