The Outcome Assessment and Complexity Collaborative (OACC) initiative is seeking to implement outcome measures into routine palliative care in South London. This will enable local patients, families and services to benefit from this proposal. We are looking to develop outcome measures, training materials and implementation, as well as feedback strategies that may subsequently be nationally applicable.
The project, led by Professor Irene Higginson, Dr Fliss Murtagh and Dr Barb Daveson, and formerly managed by Dr Jana Witt, aims to embed outcome measurement into routine palliative care in five South London hospitals (King’s College Hospital, Guy’s Hospital, St Thomas’ Hospital, Princess Royal University Hospital and Lewisham Hospital), as well as a local hospice (St Christopher’s Hospice) and three community palliative care teams (Guy’s Community Palliative Care, Lewisham Community Palliative Care and St Christopher's Community Palliative Care).
Six outcome measures have been selected for use in the OACC project these include; Phase of illness, the Australia-modified Karnofsky Performance Status (AKPS), Integrated Palliative care Outcome Scale (IPOS), Views on Care (VoC) measure, the Barthel index (for inpatient use only) and the Zarit carer interview. Routine use of these outcome measures in palliative care could improve services provided to patients and families, as these services may then be better customised to individual needs based on the outcome data collected. Additionally, we aim to establish feedback mechanisms wherein clinical teams can make effective use of the data collected, both at an individual patient and organisational level to systematically improve the quality of palliative care services and to minimise variations in practice.
Furthermore, on an organisational and national level, such an approach would enable comparisons between services and outcomes in different parts of the country for benchmarking and auditing purposes.
The work of OACC also integrates with the evolving national work on data and outcomes for palliative care, as well as the Palliative Care Development Currency.
A very successful workshop for sites interested in using outcome measures and connecting with OACC, co-hosted with Hospice UK, took place on Friday 27th June 2014, with over 150 delegates in attendance. the presentations (pdf) and video recording from this workshop are available on the OACC Workshop page.
The OACC project is funded by the Guy’s and St Thomas’ charity.
30 November 2016- Train-the-Trainer workshop in collaboration with Hospice UK hosted at Cicely Saunders Institute in London.
2 November 2016- Train-the-Trainer workshop in collaboration with Hospice UK hosted at St Gemma’s Hospice in Leeds.
14 September 2016- Train-the-Trainer workshop in collaboration with Hospice UK hosted at St Catherine’s Hospice in Preston.
1 June 2016- Train-the-Trainer workshop in collaboration with Hospice UK hosted at St Barnabas House in Worthing.
25 May 2016- Train-the-Trainer workshop in collaboration with Hospice UK hosted at St John's Hospice in Lancaster.
27 April 2016- Train-the-Trainer workshop in collaboration with Hospice UK hosted at St Luke's Hospice in Sheffield.
16 March 2016- Train-the-Trainer workshop in collaboration with Hospice UK. The first pilot workshop for sites owning an OACC Palliative Care Outcome Measures Resource Pack.
11 & 12 February 2016- Outcome Measures in Palliative Care: Using the POS family of measures, book your place to attend these workshops designed for palliative care professionals wanting to learn more about the POS family of measures in clinical and research settings.
June 2015-present- The OACC team, in collaboration with Hospice UK are currently running monthly webinars as part of The OACC Palliative Care Outcome Measures Resource Pack support. Webinar topics so far have covered 'Preparing your service for implementation of outcome measures', 'Capturing outcomes data and integrating this within IT systems', 'Using data at individual and service level' and 'How to collect and use outcome measures in practice'. To enquire about how to buy a Resource Pack simply email firstname.lastname@example.org
6 July 2015- The OACC's Quality Improvement Faciliators presented at the Cicely Saunders Institute conference 'Measuring the difference we make: Outcome measures and quality indicators in palliative care'. Their presentation 'Implementing outcome measures into practice' was given to over 100 delegates from various palliative care professional backgrounds.
8-10 May 2015- The OACC team presented research via poster and oral presentations during the 14th World Congress of the European Association for Palliative Care (EAPC) in Copenhagen. Dr Fliss Murtagh presented an overview of the OACC project and poster presentations from the team included; Bridging the Gap between Practice and Research, Implementing Outcome Measures in Palliative Care, International advances in outcome measurement in palliative care and An Updated Systematic Review of the Use of Two Popular Measures in Clinical Care and Research
30 October 2014- Watch the OACC workshop, in collaboration with Project C-CHANGE with international speakers including Professor Kathy Eagar, Professor David Casarett and Dilwyn Sheers
Meet the Team
April 2016- All 'Train-the-Trainer' workshops taking place in Spring are now sold out. However, more are planned for Autumn 2016, please email for more details on this. We have now sold over 200 OACC Resource Packs which which demonstrates how palliative medicine services want to systematically demonstrate and measure the difference they make to patients and their families.
February 2016- The Cicely Saunders Institute and Hospice UK are pleased to announce further dates for Level 2 ‘Train-the-Trainer’ workshops have been confirmed across the UK. Places can be booked on the Hospice UK website and will take place at St Luke's Hospice in Sheffield, St John's Hospice in Lancaster and St Barnabas House in Worthing. The training will be facilitated by Quality Improvement Facilitators Marsha Dawkins and Susanne de Wolf-Linder from the Institute and Sarah Russell from Hospice UK.
January 2016- Owing to the success of our Level 1 support package via The OACC Palliative Care Outcome Measures Resource Pack; the Cicely Saunders Institute and Hospice UK are pleased to announce they will be launching Level 2 support which will start with a ‘Train-the-Trainer’ workshop at the Institute on 16th March 2016. Read here for more details regarding what the support will entail and book your place on the workshop. Please note only organisations that have an OACC Palliative Care Outcome Measures Resource Pack will be able to send staff members to this workshop. For any further questions, please do email us.
November 2015- The Cicely Saunders Institute and OACC project team were at Hospice UK's annual conference with Dr Fliss Murtagh presenting 'Learning from the use of Outcome Measures: the difference we can make' alongside joint Chief Executive of St Christopher's Hospice, Dr Heather Richardson. Staff were also present at the exhibitor's stand where lots of hospices and palliative care providers signed up to the mailing list and received OACC updates from our Quality Improvement Facilitators; Susanne and Marsha.
October 2015- Recruitment on the OACC feasibility study has now closed across all palliative care sites. The aim of this feasibility study is to assess whether a full trial on effectiveness and implementation of outcome measurement in palliative care is possible and to inform its planning. Researchers will now begin the analysis of the data collected during interviews with patients, carers and staff members.
October 2015- The OACC monthly webinars continue with subscribers of our resource pack (which can be purchased here) October's topic is 'Engaging clinical staff in collecting and using outcome measures' and will be presented by Dr Fliss Murtagh and Marsha Dawkins.
September 2015- Dr Fliss Murtagh presented at the Scottish Partnership for Palliative Care Annual Conference 'From Worms, Butterflies and Veils to Outcomes'. Her presentation 'Everyone’s Talking About Outcomes' tackled the common questions of what precisely are they, why are they important; what and how should we measure in palliative and end of life care?
August 2015- Monthly webinars continue to be hosted by the OACC team, in collaboration with Hospice UK as part of The OACC Palliative Care Outcome Measures Resource Pack support. Dr Jana Witt and Marsha Dawkins presented on 'Using data at individual and service level', preparations are ongoing to present the September webinar which will focus on 'Collecting and using outcome measures'. To join these webinars and access a whole-host of resources, visit here to purchase a pack.
July 2015- The OACC team, in collaboration with Hospice UK continue to support services that purchased the Palliative Care Outcome Measures Resource Pack via monthly webinars. The first, led by our Quality Improvement Facilitators, discussed 'Preparing your service' and their experiences in training teams. The second was led by Dr Fliss Murtagh and was entitled 'Capturing outcomes data and integrating this within IT systems'. To join these webinars and access a whole-host of resources, visit here to purchase a pack.
May 2015- The OACC team, in collaboration with Hospice UK, has launched The OACC Palliative Care Outcome Measures Resource Pack. They are designed to support hospices and palliative care providers across the UK in implementing outcome measures into clinical practice. The Pack is available to buy from the King's College London estore, for more information please contact us.
March 2015 - The OACC team has an exhibition stand at the Association for Palliative Medicine conference, please do come and say hello.
February 2015 - The team will be attending this years EAPC 2015 in May and will be presenting posters and Dr Murtagh will present an oral session on outcome measures and experience within the project of implementing outcome measures into routine practice.
January 2015 - OACC lead, Dr Murtagh gives Parliamentary evidence
September 2014 - Once upon a time... stories and boundaries - ehospice
Consultant and Reader in Palliative Medicine, Dr Murtagh is a co-lead on the OACC project. Dr Murtagh has a clinical and research interest in clinical outcome measures in palliative care.
Dr Daveson is a Cicely Saunders International lecturer in health services research in palliative care.
Professor Higginson is a professor of palliative care and a Consultant in Palliative Medicine at King's College Hospital. She is the director of the Cicely Saunders Institute and also scientific director of Cicely Saunders International, the charity that supported the creation of the Cicely Saunders Institute, and continues to support research in the field.
Dr Bristowe is a post doctoral researcher who joined the OACC team in January 2016, as Project Manager, to oversee the two research studies running alongside OACC, looking at the implementation and effects of outcome measures in palliative care.
Susanne's role is to facilitate implementation of outcome measures into clinical practice in palliative care services meaningfully and sustainably. By working closely with clinical teams in this process, the OACC project gains unique insight and expertise to inform future initiatives in order to improve care.
Marsha works alongside clinical palliative care teams to provide training in the use of outcome measures and negotiate ways in which these can be integrated into their current ways of delivering care. Her role also includes assisting with the analysis, interpretation and feedback of the data from the sites within the OACC team. Marsha's role has also been extended to include support and advice to teams external to the OACC projects who are currently implementing the OACC suite of measures into their service.
Joanna joined the OACC (and C-CHANGE) team in September 2015 as a research assistant to focus on data analysis; supporting the work of the Quality Improvement Faciliatators in their feedback sessions to OACC pilot site teams.
Dr Jana Witt - Project Manager & Research Associate
Dr Witt was a post doctoral researcher who joined the OACC team in November 2013 and left in September 2015. As Project Manager she coordinated the day to day running of the implementation project and supported data analysis and feedback sessions. As Research Associate she managed two studies running alongside OACC, looking at the implementation and effects of outcome measures in palliative care. Dr Witt can still be contacted here
Francesca Cooper - Project Administrator
Francesca was a senior administrator to the OACC project from December 2013 to April 2016, as well as various other projects throughout the Cicely Saunders Institute.
Stacey Pereira - Research Administrator Stacey was a Research Administrator at the Cicely Saunders Institute from January to July 2016, her responsibilities included working on the OACC and CLAHRC projects. Stacey also assisted with the organisation of the Open Seminar and Lecture Series.
To find out more about the OACC project and further information on our research please do contact the research administrator via any of the methods below and we will endeavour to get back to you as soon as possible:
Telephone: 0207 848 0096
Email: Lelia Oniri or OACC
Post: OACC Team
Department of Palliative Care, Policy & Rehabilitation
Cicely Saunders Institute
London SE5 9PJ