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Patient & Carer Experience

Patient & Carer Experience

Patient and carer experience is a programme of work that explores and seeks to improve the patient and carer experience of health care with a particular focus on cancer, mental health, diabetes and long-term conditions.

Programme leads: Professor Emma Ream & Professor Glenn Robert

Current Projects

Testing accelerated experience based co-design: using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement.

Project Details

  

A study to the barriers to early presentation and diagnosis of breast cancer in black African, black Caribbean and white women.

Project details.

 

Informing the development of NICE quality standards through secondary analysis of qualitative, narrative interviews on patients' experiences.

Project details

 

A user centred information strategy for adult critical care patients and their families, at the point of discharge from critical care to ward: an exploration of feasibility and effectiveness.

Project details.

 

Enhancing the role of carers in the outpatient chemotherapy setting: a participatory action research programme.

Project details

 

Completed Projects

Evaluation of a Community-based Prostate Health Clinic in London

Project Report

 

Measuring patient experience: evidence base

Projects details, publications & reports.

 

Patients' experiences of care and the influence of staff motivation, affect and well-being.

Project details, publications & reports

 

Woundcare for Epidermolysis Bullosa (WEB) project

Project details, publications & reports

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