DESCRIPTION
Applied research to investigate, discover and evaluate better ways to manage complex symptoms and problems among those affected by progressive and life threatening disease. Our work focuses on patients including those at the end of life and their carers/family in the areas of cancer and also non-cancer including COPD, heart failure, HIV/Aids, renal failure, and long term neurological conditions such as Parkinson’s disease and multiple sclerosis.
There are five main strands of work:
- Measuring outcomes
- Evaluating and improving care
- Symptom led research
- Dying in society
- Needs assessment and policy
We offer a multi-professional MSc, Postgraduate Diploma and Postgraduate Certificate in Palliative Care, which are research based, along with training for a number of PhD students.
Associated research programmes
Associated staff research interests
Interests:
Palliative and end-of-life care, especially for advanced kidney disease, other non-cancer conditions, and older people. Complexity, casemix, and costs in palliative and end of life care, including casemix classification and funding models.
Tel:
020 7848 5583
Email:
Website:
Interests:
Palliative care; medical sociology; culture; ethnicity; carers.
Email:
Website:
Interests:
Principal research interests are in gathering the evidence to inform effective and cost-efficient health services provision in rehabilitation for people with long term neurological conditions.
Research techniuqes include:
1. Systematic literature reviews ( including Cochrane and othe methodologies)
2. Analysis of large prospective longitudinal cohort datasets to explore effectiveness of complex interventions
3. Development and evaluation of outcome measures for patients with complex neurological disability
4. Casemix development which encompasses the evaluation of rehabilitation needs, and interventions offered in relation to those needs, in order to identiy gaps in service provision
5. Development of techniques for application of patient level costing and evaluation of cost efficiency in complex disability
Tel:
020 8869 5161
Fax:
0208-869-5358
Email:
Website:
Interests:
Palliative care intervention on the basis of need not diagnosis/prognosis should be achieved wherever possible. Models of care that take account of pain, other symptoms and psychological/social problems among patients and families are being developed. This is particularly true in heart failure and HIV patients, who access treatment during an unpredicatble disease trajectory that mirrors a chronic rather than rapidly progressive terminal condition. Families and friends also suffer difficulties as patients move towards the end of life and we have been developing and testing a complex intervention for this population. The HIV epidemic and rising cancer incidence in Africa have necessiated a growing palliative care movement. We have strong research partnerships with academic and clincial institiutions in Africa where we have undertaken pain and symptom research as well as the development and validation of an outcome scale (APCA African POS). This has led directly to a 5-centre full clinical audit cycle in Africa, and to a multi-centre evaluation in East Africa.
Tel:
020 7848 5518
Fax:
020 7848 5517
Email:
Website:
Interests:
My professional background is in clinical psychology and neuropsychology. Since 2002 I have primarily worked in interdisciplinary academic rehabilitation with a focus on research and teaching. I am interested in cognition and rehabilitation in neurological disorders and the use of psychometrics to develop sound assessment and outcome measures for these conditions. I enjoy using both classical psychometrics and modern item response theory methods (Rasch aanalysis and Mokken scaling) in this work. I also have an interest in the development of a sound theoretical basis for interdisciplinary clinical and community rehabilitation. To date I have published 62 peer-reviewed journal articles, two invited journal articles and six book chapters.
Email:
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Interests:
Interventions to: improve end of life care in for older people, particularly for those living in care homes; help people maintain a sense of dignity at the end of life; reduce psychological and spiritual distress at the end of life.
Tel:
020 7848 5578
Fax:
020 7848 5517
Email:
Website:
CONTACTS FOR FURTHER INFORMATION
Professor Irene Higginson
Email
Website