Dr Diana Jackson
Senior Research Fellow
Phone: 0207 848 5582
Fax: 0207 848 5517
The rehabilitation and after care of people with long term neurological conditions (LTNCs) is the focus of Diana’s research activities. Research into the assessment and management of shoulder pain in stroke patients has led to (a) the development of a pictorial pain assessment tool that is accessible to stroke patients with language deficits, and (b) an integrated care pathway for managing shoulder pain.
Between 2003 and 2010, she ran three successive mixed methods studies into experiences of caring for adults with diverse LTNCs in the community, which accumulated data from a total of 650 family carers from across the UK. Quantitative survey data were supplemented by recorded telephone interviews in two studies, providing a rich source of qualitative data on the impact of caring and ways in which carers want to be supported. Further information on the outputs and impact of this body of work is set out in the section on ‘Critical Impact’ below.
Most recently, she has worked with colleagues on an evaluation of community rehabilitation service delivery in LTNCs. This multi-centre prospective cohort study explored the utility of setting up a register and associated dataset to support the tracking of patients through services. It also investigated met and unmet rehabilitation needs and their cost implications in a cohort of patients with complex neurological disability discharged from specialised in-patient rehabilitation units in London.
Key Leadership Roles
Diana trained as a physiotherapist at King’s College Hospital and specialised in neurological rehabilitation, working across in-patient, out-patient and community settings. In 1996 she took an MSc in Rehabilitation Studies at the University of Southampton and subsequently joined the Regional Rehabilitation Unit at Northwick Park Hospital as a researcher. Work to develop a multi-disciplinary integrated care pathway for managing post-stroke shoulder pain, with a focus on pain assessment in patients with communication and cognitive deficits, led to the award of a PhD on the assessment of post-stroke shoulder pain from the University of Southampton in 2004.
Since joining the CSI in 2003, Diana has led research on three Department of Health funded studies to support the National Service Framework for Long-term Neurological Conditions . She has also collaborated with colleagues on a substantial study of community rehabilitation service delivery. Evidence from this body of work will inform the way health and social services are delivered to people with LTNCs and their carers.
Personal Tutor on the MSc in Palliative Care
Post-graduate PhD Research Co-ordinator for Rehabilitation, which includes:
- Responding to enquiries from potential applicants and identifying possible supervisors from the department.
- Monitoring the progress of current students, the support provided by supervisors, their training and development needs and signing off their progress reviews.
- Liaision between the School of Medicine post-graduate research committee and departmental colleagues.
- Jackson D, McCrone P, Turner-Stokes L. Costs of caring for adults with long term neurological conditions. Journal of Rehabilitation Medicine 2013 (in press).
- Koffman J, Gao W, Goddard C, Burman R, Jackson D, Shaw P, Barnes F, Higginson I. Progression, symptoms and psychosocial concerns among those severely affected by Multiple Sclerosis: A population-based mixed methods comparison of Black Caribbean and White British people. PLOS One 2013 (in press).
- L Turner-Stokes, P McCrone, DM Jackson, RJ Siegert. The Needs and Provision Complexity Scale: a multicentre prospective cohort analysis of met and unmet needs and their cost implications for patients with complex neurological disability BMJ open 2013: 3(2)
- Higginson IJ, Gao W, Jackson D, Murray J, Harding R. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. Journal of Clinical Epidemiology 2010; 63: 535-542.
- Siegert RJ, Jackson, D, Tennant A, Turner-Stokes L. Factor analysis and Rasch analysis of the Zarit Burden Interview for acquired brain injury carer research. Journal of Rehabilitation Medicine 2010 42(4):302-9.
- Turner-Stokes L, Williams, H, Howley D, Jackson D. Can the Northwick Park Dependency Scale be translated to a Barthel Index? Clinical Rehabilitation 2010; 24(12):1112-1120.
- Law, J, Fielding B, Jackson D, Turner-Stokes L. The UK FIM+FAM Extended Activities of Daily Living module: evaluation of scoring accuracy and reliability. Disability & Rehabilitation, 2009; 31(10): 825-830.
- Jackson D, Turner-Stokes L, Murray J, Leese M, McPherson K. Acquired brain injury and dementia: A comparison of carer experiences Brain Injury, 2009; 23(5): 433–444.
- Jackson D, Turner-Stokes L, Murray J, Leese M. Validation of the Memory and Behavior Problems Checklist-1990R for use in acquired brain injury. Brain Injury 2007; 21(8): 817-824.
- NIHR SDO Programme, project 0001833, 2009-2012: Evaluation of community rehabilitation service delivery in long term neurological conditions. Siegert R, Turner-Stokes L, McCrone P, Playford D, Fleminger S, Bassett P, Howe B, Jackson D, Higginson I, Sims D.
- MS Society Project Grant, 2009-2011: Preferences for care and knowledge among people severely affected by MS and their caregivers: does ethnicity make a difference? Koffman J, Higginson I, Jackson D, Silber E, McCrone P, Burman R.
- Department of Health NIHR project 053/0007, 2006-2010: Research for Long Term Conditions programme. “Support for carers, particularly those with multiple caring roles: an investigation of support needs and cost of provision”. Turner-Stokes L, Harris J, Jackson D, McCrone P, Easton A, Leigh N.
- Department of Health NIHR project 053/0012, 2009-2010: Research for Long Term Conditions programme. “How do carers of people with long term neurological conditions experience the provision of replacement care?”. Turner-Stokes L, Jackson D, Harris J, Georgeson J, McCrone P, Saleem T, Higginson I.
Two NIHR carers projects (grants 053/0007 and 053/0012) led by Diana, were commissioned by the Department of Health’s Policy Research Programme (PRP) to support the Research Initiative for Long-Term Neurological Conditions (LTNCs). The PRP is a national programme of research that provides the evidence base for policy-making in the Department of Health, through policy directorates in the Department and directly to the Secretary of State for Health and his Ministers.
This research has increased knowledge of the day-to-day experience of living with neurological impairments, and the effects of taking on a caring role for people with a wide range of LTNCs. It has increased understanding of how barriers to accessing health and social services can be overcome, and it has produced essential evidence about how future services should be designed to be effective and provide good value for money. It also describes how outcomes can be improved for people with LTNCs, and provides summary checklists for planners and commissioners, providers and practitioners, educators, voluntary and third sector organisations and workforce planners.