Location: Dinwoodie Lecture Theatre, Cicely Saunders Institute, Denmark Hill Campus
Managing uncertainty for people with dementia in care homes
Speaker: Professor Claire Goodman, Professor of Health Care Research, Centre for Research in Primary and Community Care, University of Hertfordshire
About the speaker: Claire has a background in district nursing. Her research focuses on the oldest old and how primary health care can work with social care and third-sector providers to support this population. This includes nationally funded studies on end-of-life care for older people with dementia, interprofessional working for older people with complex needs living at home, and interventions that support effective working between primary health care services and care homes. All of her research is multidisciplinary. She is a Deputy Director of the East of England CLAHRC and she was a member of the EU JPND EU Palliative and End of Life Care Research in Neurodegenerative Diseases Action Group that reported at the end of last year on future research priorities. She recently published an editorial in Palliative Medicine with Jenny van der Steen, ‘What research we no longer need in neurodegenerative disease at the end of life: the case of research in dementia’.
Abstract: The withdrawal of the Liverpool Care Pathway (LCP), goes to the heart of assumptions about how dying is recognised, what is known about how people die, who provides the care and who makes the decisions regarding treatment options. There is recognition that even the term ‘pathway’ is misleading with its implications of known direction, shared goals and the ability to standardise care. This presentation will draw on findings from three recently completed care home studies on end of life care that included people with dementia. It will consider if an intervention’s ability to ‘hold’ uncertainty between the different players and organisations at different points in the dementia trajectory is as important as the use of structured approaches to assessment and communication, training, facilitation of learning and access to expertise in palliative care.
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