Category: Presentation and panel discussion
Location: Dinwoodie Lecture Theatre, Cicely Saunders Institute, Denmark Hill Campus
I want to feel at home when I pass: how can we better cater end-of-life care to patients in a medical setting?
Speaker: Dr Fiona Kelly, Bournemouth University Dementia Institute (BUDI)
About the speaker:
Fiona is committed, through teaching and research, to improving the lives and everyday experiences of people with dementia and those who support and care for them. Her philosophical and research interests include: human rights, selfhood in dementia, end-of-life care, dementia-friendly design, assistive technology, service evaluation, exploring cultures of care and hearing the views and opinions of people with dementia and those who support them.
Research skills include: ethnography; interviews and focus groups with people with dementia, families and care staff; observational tools (Dementia Care Mapping, Piece-dem); design audit tools (the Stirling Design Audit Tool, the Environmental Audit Tool); video-recording with people with dementia; qualitative data analysis and writing. Alongside her academic work, she works one night shift a month in a care home for people with dementia: this allows her to maintain her nursing skills, connect with the everyday lives of people with dementia in care homes, identify areas for research and teach with credibility.
Her recent papers include:
Fleming R, Kelly F, Stillfried G. ‘I want to feel at home’: establishing what aspects of environmental design are important to people with dementia nearing the end of life. BMC Palliat Care. 2015;14:26. doi: 10.1186/s12904-015-0026-y
Following Fiona’s presentation, she will join in a panel discussion, members of which will include a clinician, a lay representative and a member of the King’s College London Palliative Care Society. The aim is to stimulate discussion and thinking on care environments. The main considerations will be:
- What are the key factors to consider when making patients ‘feel at home’ during the end of life?
- If most patients prefer to pass away at home, why is this not being made more available?
- What should the role of the medical team be if patients prefer to die at home?
- Are medical teams reluctant to allow patients to receive end-of-life care at home?