Location: Dinwoodie Lecture Theatre, Cicely Saunders Institute, Denmark Hill Campus
'Then she won’t miss me when I’m gone': Using an interactionist perspective to understand the experiences and behaviour of children with life limiting conditions and life threatening illnesses and their families
Speaker: Professor Myra Bluebond-Langner, University College London
About the speaker: Myra heads the Louis Dundas Centre for Children’s Palliative Care - an academic and clinical partnership involving the Institute of Child Health and Great Ormond Street Hospital for Children. She is also Board of Governors’ Professor of Anthropology (emerita) and founder and former director of the Rutgers University Center for Children and Childhood Studies. An anthropologist by training, her research over the last 40+ years has focused on children with life limiting conditions and life threatening illness and their families. Myra’s research includes studies of children’s understanding of their illness and awareness of death, impact of illness on parents and siblings, and decision making about care and treatment when cure is not likely.
Abstract: Working out of an approach in social sciences broadly characterized as an “interactionist perspective”, Myra will look at how that perspective can inform research and practice through a discussion of several studies she has conducted on children with cancer and cystic fibrosis and their families. Myra will focus on seriously ill children’s understandings of illness and death, their parents approaches to care and treatment and the children’s roles in decision making as well as the implications of the findings for development of clinical guidance.
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