Outcome measures in palliative care: Using the POS family of measures - Clinical and research workshops (9th and 10th February 2017)
Clinician training day (Thursday 9th February) designed to enable outcome measurement in clinical scenarios.
- To be introduced to Outcome measures and the POS family of measures
- Explore different ways of using the POS family of measures, understanding the role that they can play in improving the quality, efficiency and availability of palliative care
- Hear experiences of using outcome measurement in clinical practice from an international perspective
- Be trained in using the various POS family of measures and examine how the use of these outcome measures can demonstrate the effects on your service and reporting of data
- Hear about the latest IT developments and showcase of integrated data reporting on clinical systems
Researcher training day (Friday 10th February) focussed on the use of POS in research.
- Review the latest POS family scientific developments including their validity and reliability
- Discuss and review the latest findings generated from research involving the POS family of measures including work developing tools for dementia patients, as well as Renal and Neurological conditions, and Heart Failure patients
- Discuss and shape future scientific development of the POS family of measures analysing data; to be used in research and translation and cultural adaptations in Africa
Institute Monthly Seminar Series
The Institute hosts a seminar series featuring speakers, presenting on a range of related research topics. The series is free and open to the public. All King’s staff and students are encouraged to attend.
Wednesday 25th January 2017
Wednesday 22nd February 2017
‘The challenges and opportunities for an ageing population living with frailty’
Speaker: Professor Martin Vernon, National Clinical Director for Older People and Person Centred Integrated Care at NHS England, Central Manchester University Hospitals
About the speaker:
Martin qualified in 1988 in Manchester. He moved to East London to train in Geriatric Medicine, acquiring an MA in Medical Ethics & Law from KCL. In 1999 he returned to Manchester taking on a Consultant Geriatrician post building community geriatrics services. In 2010 he was Associate Medical Director for NHS Manchester, and more recently Clinical Champion for frail older people & integrated care in Greater Manchester. For over 5 years he has been British Geriatrics Society Champion for End of Life Care, and was a standing member of the NICE Indicators Committee. In 2015 he moved to Central Manchester as a Consultant Geriatrician and Associate Head of Division for Medicine & Community Services. Martin holds Honorary Academic Posts at Manchester and Salford Universities and appointed as Visiting Professor at the University of Chester (2016). In 2016 he was appointed National Clinical Director for Older People and Person Centred Integrated Care at NHS England.
Martin’s talk covered the following themes: the ageing demographic, the social and economic consequences of an ageing population and its impact on the English health and social care system, multi morbidity and frailty, frailty as a long term condition and its utility to support and manage populations and individuals, and using frailty identification to improve palliative and end of life care.
Wednesday 22nd March 2017
A new biography of Cicely Saunders: goals, challenges and methods
Speaker: Professor David Clark, Sociologist at the University of Glasgow, School of Interdisciplinary Studies and Lead in Glasgow End of Life Studies Group
About the speaker:
Prof David Clark founded the International Observatory on End of Life Care at Lancaster University (2003) & is interested in the history & global development of palliative care, with a particular knowledge of the life & work of Dame Cicely Saunders. His most recent book is a monograph on the history of palliative medicine from the 19th century, ‘To Comfort Always’ (Oxford University Press, 2016). In 2015 he served the Scottish Government as Consulting Editor to its Strategic Framework for Action in Palliative and End of Life Care and assisted the Scottish Parliament in its inquiry We Need to Talk about Palliative Care. A Vice President of Hospice UK, he is an elected Fellow of the Academy of Social Sciences and holds a Wellcome Trust Investigator Award for a 4 year study - Global Interventions at the End of Life.
To mark the centenary of Cicely Saunders birth, David is writing a new work for publication by Oxford University Press (June 2018). With the consolidation of the Cicely Saunders archive and access to a wide range of related primary and secondary source material, it becomes possible to provide a more detailed and nuanced account of her life and contribution. David draws on over 20 interviews conducted with Cicely Saunders in the last years of her life, and recorded with a posthumous biography in mind, as well as a wide range of other oral history interviews with Cicely, her colleagues and friends. Despite the richness and range of the source materials, there are many challenges involved in such a work – and the daunting prospect of making sense of the life and contribution of a pivotal figure in the development of modern hospice and palliative care. He will discuss his progress to date.
Wednesday 26th April 2017
'Unexpected results - rehabilitation trials demonstrating no benefit'
Speaker: Professor Catherine Sackley, Head of Physiotherapy, Professor of Rehabilitation and Deputy Head of Division in Health and Social Care Research, King’s College London
About the speaker:
Professor Sackley is a NIHR Senior Investigator and trialist who specialises in the evaluation of complex and behavioural interventions. Her research focuses on the problems experienced by older people and people with stroke and neurological disease living in the community. Her team works closely with older people and her work has informed clinical practice, particularly for the residents of care homes. It covers common daily problems such as incontinence, difficulties with mobility and other activities of daily living. The group has supported research capacity development within the NHS and Catherine has supervised over twenty five training awards for Allied Health Professionals.
Large, definitive trials have demonstrated no benefit of the rehabilitation intervention in stroke and Parkinson's disease. Publishing and implementing the results brings challenges. How can we learn from these studies and what does it mean for the design and conduct of future studies.
Wednesday 24th May 2017
Capturing the views of patients and carers about their experiences of care co-ordination
Speaker: Jenny King, Associate Director of Research, Picker Institute Europe
About the speaker:
Jenny is the Associate Director of Research at Picker. She has a BSc in Psychology and a Msc in Forensic Psychology. Jenny has worked at the Picker Institute since 2008 and has led the research team since 2013. She has extensive familiarity with all aspects of survey design and delivery, including as the project lead for the NHS staff survey co-ordination centre (2011-2013). Since 2013 Jenny has focused on applied social research and evaluation projects, including both long-term, large scale research studies and shorter consultancy projects. This includes leading on Picker’s research looking at the measurement of people’s experiences of integrated care.
Jenny’s presentation will first look at why it is important to measure people’s experiences of co-ordinated care and what should be measured. She will look into how patient perspectives of co-ordinated care can be measured focusing on work Picker has carried out over the last four years. This includes research funded by the Aetna Foundation to produce a robust user-reported measure that can capture the experience of older people with chronic conditions receiving care from different providers.
Wednesday 28th June 2017
Understanding Symptoms as a Threat to Function
Speaker: Dr Matthew Maddocks, Lecturer & Specialist Physiotherapist, King’s College London
About the speaker:
Matthew is a specialist physiotherapist and Lecturer in Health Services Research committed to developing rehabilitation strategies for people with advanced disease. He has been a National Institute of Health Research Post-Doctoral and Clinical Trials Fellow, has lead studies across advanced cancer, respiratory disease and in the hospice setting, and Chairs the Advanced Disease and End of Life Subgroup of the National Supportive and Palliative Care Clinical Studies Group.
This presentation will explore the role of symptoms in the functional decline experienced by people living with advanced disease, and ask ‘what can be done to maintain function and independence towards the end of life?’
Wednesday 26th July 2017
Outcomes following treatment limitation discussions in newborn infants
Speaker: Professor Dominic Wilkinson, Professor of Medical Ethics & Director of Medical Ethics, Oxford Uehiro Centre for Practical Ethics
About the speaker:
Dominic is Director of Medical Ethics and Professor of Medical Ethics at the Oxford Uehiro Centre for Practical Ethics, University of Oxford. He is a consultant in newborn intensive care at the John Radcliffe Hospital, Oxford. He holds a health practitioner research fellowship with the Wellcome Trust. Dominic has published more than 100 academic articles relating to ethical issues in intensive care for adults, children and newborn infants. He is the author of 'Death or Disability? The 'Carmentis Machine' and decision-making for critically ill children' (Oxford University Press 2013). He is editor of the Journal of Medical Ethics and managing editor of the open access Journal of Practical Ethics.
In the newborn intensive care unit, it is common for doctors to discuss goals of care and possible treatment limitation with parents of infants with severe brain injury. Some newborn infants survive because of parental decisions to continue treatment, or despite explicit decisions to withhold life-prolonging treatment. In this talk Dominic will review what we know about the outcome for infants, and the ethical implications.
The effects on costs of palliative care teams in hospitals
Charles Normand is the Edward Kennedy Professor of Health Policy and Management at Trinity College Dublin and Visiting Professor of Health Economics at the London School of Hygiene and Tropical Medicine. His main research interests are in the effects of populating ageing on health and social care, and on economic issues in palliative care. He has published nearly 200 papers on health economics, and has been actively involved in the management of services and service delivery. His work in palliative care has covered both issues around costs and on ways of assessing benefits and what people want from services.
In an ideal world health service priorities would be based on costs and benefits - all services would be available if the benefits exceed the costs. This should still be the aim, although it can be very difficult to assess both costs and benefits in the context of complex services such as palliative care. In some cases a service can reduce rather than increase costs, and there are times when greater or the same benefits can be achieved at lower cost. Clearly there is no coherent argument that we should not provide a service if this is the case.
At the heart of palliative care is skilled support for decision making. The needs of patients and carers are complex, with legitimate differences in objectives and different patterns of Illnesses. Timely and skilled (usually team based) consultations and support can increase access to effective care, may reduce interventions of low value and can lead to better trajectories of care.
This seminar will discuss findings studies on the effects on costs of palliative care teams in hospitals. First, timing of such interventions is crucial and second, the effects are very dependent on patterns of illness. Risks of overtreatment are higher in patients with complex needs, which brings higher costs. The ongoing analyses of the data help us to understand how palliative care can both improve outcomes and lower costs. When costs are lower and benefits higher there is a particular priority.
A Conversation Starter around Death and Dying - Screening of the film 'Two Weeks' (Thursday 11th May 2016)
The ‘Conversation Starter around death and dying’ event was held as a way to reach out to members of the public and healthcare professionals who are not regular attendees of the CSI events, and to encourage conversation around death and dying as a topic that is often ignored or thought of as taboo. Organisers also hoped to potentially attract new individuals to join the department’s pool of PPI members. This event was supported by Wellcome Trust
The event was split into two sections – an introduction from Baroness Julia Neuberger and screening of the film ‘Two Weeks’, which focuses on a family caring for their mother in her last days of life, followed by an expert panel attended by Kate Heaps (chair), Katherine Sleeman, Lucinda Jarrett and Sanjay Chadha (CSI PPI member).