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Involving service-users in palliative care research – new paper from the Cicely Saunders Institute published in Palliative Medicine, eHospice

Researchers at the Cicely Saunders Institute explain to eHospice why service users should be involved in palliative care research. The research was led by Dr Barbara Daveson, Lecturer in Health Services at the Institute. A previously established method in palliative care – the MORECare Transparent Expert Consultation approach —  was used. The research involved hosting a patient, carer and public involvement (PPI) workshop in 2014 at the Institute. Individual priorities of patients, caregivers, user advocates, researchers and members of the public were shared and then carefully analysed. Other researchers from the Cicely Saunders Institute mentioned in the article were: Susanne de Wolf-Linder, Dr Jana Witt and Professor Irene HigginsonThe results of this work have been published in the Palliative Medicine journal

Is cancer money well spent?, BBC Radio 4

One in two of us is likely to be diagnosed with cancer at some time in our lives and the NHS England budget for cancer treatment is over £6 billion. In a Radio 4 investigation on how money is spent on cancer treatment, Matthew Hill asks whether we have got the balance right. Professor Irene Higginson, Director of the Cicely Saunders Institute, is one of the guests on the programme (this item runs approximately 31 minutes into the programme).  

'I had a ticking time bomb inside me': four women who faced Angelina Jolie’s choiceThe Guardian

Angelina Jolie has been open about her decision to reduce her risk of developing ovarian cancer by undergoing extensive surgery. In this article, other women share their stories. Dr Jana Witt, who is Project Manager & Research Associate at the Cicely Saunders Institute, created an Oophorectomy Decision Explorer for her PhD at Cardiff University, which evolved into a decision-making tool. She commented on how media coverage of Angelina Jolie has influenced how people view preventive surgery, but emphasises that it is really an option only for those women who are at high risk. Those women she spoke to for her research who chose preventive surgery expressed no regrets at their decision; however, the same was true of the women who opted for surveillance instead.

ACCESSCare for lesbian, gay, bisexual and transgendered people approaching the end of life, eHospice 

An online article about ACCESSCare features on E-hospice this month. The article includes an interview with the study's Principal Investigator, Dr Richard Harding. The project, which is funded by Marie Curie Cancer Care, aims to increase demand for, and supply of, palliative care to sexual minorities. Dr Harding said: “Marie Curie has a strong focus on access to end of life care – and quality end of life care – it’s important that they’re showing the leadership for LGBT communities.” The study is now open and recruiting people who identify as lesbian, gay, bisexual and/or transgendered (LGBT) and are facing the later stages of a life limiting illness. 

The Sunday Programme, BBC Radio 4

Dr Jonathan Koffman, Senior Lecturer at the Cicely Saunders Institute, and MSc alumna and visiting lecturer, Dr Libby Sallnow, took part in last Sunday’s edition of the Sunday programme, on BBC Radio 4. The programme looked at how hospitals and hospices such as St Joseph’s in Hackney, are adapting their services to respond to religious and cultural needs for relatives and patients at the end of their lives. This item runs at approximately 25 minutes 36 seconds.

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