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Patient, Family and Public Involvement at the Institute

We are pleased to report a very successful workshop event that brought together patients, carers, representatives from the public, as well as researchers, to discuss how patient, family and public involvement should be taken forward at the Cicely Saunders Institute.

On 22 April 2014 workshop participants discussed the importance of patient, family and public involvement to improve the quality and relevance of research. They suggested various ways to make involvement more collaborative, inclusive and engaging throughout the research continuum. Particularly, participants felt that patient, family and public involvement could improve the Institute's reach, engagement and impact on palliative and end-of-life care research. Researchers shared this view but also believed that patient and public involvement can aid the quality and efficiency of the research.

The workshop was well received and the first collaborative event between researchers and patient advocates as it was facilitated by both. Last week, the preliminary results were presented at the BuildCARE conference by Kirstie Newson and Dr Barb Daveson. The results will be submitted for publication.