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The crisis facing terminally ill people and their families

The Cicely Saunders Institute and Cicely Saunders International have been working closely with six other charities - Marie Curie Cancer Care; Help the Hospices; Macmillan; the Motor Neuron Disease Association; the National Council for Palliative Care; and Sue Ryder – to develop a manifesto to guide the next Government to improve care for terminally ill people and their families. The manifesto document highlights the crisis faced by the terminally ill and their families, and includes research published by the Cicely Saunders Institute. 

The five key pledges being asking of political parties are:

  • To introduce 24/7 advice, care and support for terminally ill people and their families
  • To make social care free for people at the end of life with the most substantial needs
  • To improve co-ordination between services and stop people falling through the gaps
  • To increase the amount of money spent on research that improves care for dying people (just 10p in every £100 is spent on palliative care research)
  • And to improve the data collected from terminally ill people about their experience of care, so that we can use that feedback to offer better care in the future.
The full version of the manifesto document is available to download (PDF, 211kb).