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Taking patient and public involvement online

Launch of the Cicely Saunders Institute Public Involvement Forum for research in palliative care and rehabilitation. Sophie Pask and Lisa Brighton introduce the first online patient and public involvement forum for palliative care and rehabilitation research.

Patient and public involvement is becoming increasingly recognised as a crucial throughout the research process. However, collaboration through face-to-face methods is not always possible for those who would like to be involved and contribute.

In response to this challenge, the Cicely Saunders Institute has recently developed an online Public Involvement Forum: www.csipublicinvolvement.co.uk, in collaboration with their existing patient and public involvement members. This new forum was launched on June 14th at their most recent patient and public involvement workshop, and is the first of its kind in palliative care and rehabilitation research.

The aim of this forum is to enable more patients, families, and members of the public to collaborate with researchers and shape palliative care and rehabilitation research at the Cicely Saunders Institute. Members can become involved in specific research projects, or join general discussions about palliative care and rehabilitation research. They will be able to shape research from initial stages, such as research topics, all the way through to how results are disseminated to the public.

Patient and Public interfaceWho can join, and how?

Anyone can become a member, but the Institute are specifically inviting those with experience of palliative care (as a patient, family member, friend, or carer), and members of the public with an interest in palliative care and rehabilitation research.

To join, please register by at: www.csipublicinvolvment.co.uk

If you have any questions about this new online forum, please contact Sophie Pask or Lisa Brighton at csi.ppi@kcl.ac.uk.

Acknowledgements

The Public Involvement Forum is funded by the National Institute for Health Research Collaboration for Leadership in Applied Health Research & Care Funding scheme. The views expressed are those of the authors and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health. This project is also funded by King's College London and the Wellcome Trust Institutional Strategic Support Fund.