Learning from the Experts: My Experience in Palliative Care
Posted on 21/02/2019
Written by Gabby Farrar, a fifth year medical student at Leeds University.
"In medical school, we are taught to classify things; systems of the body, specialities, medicine vs. surgery, and so on. Such classifications are very well defined, and it can be seen as out of the ordinary to question these.
Palliative care is different, as I learnt whilst on elective at the Cicely Saunders Institute, King’s College London. It is not simply associated with the physical symptoms (which, according to one consultant, are often the more straightforward part of a patient’s care) but the spiritual demands, the psychosocial aspects, and the affirmation of life, by helping patients to live as actively as possible through to death. It is truly, in a way that I had not previously experienced, holistic.
Throughout my previous teaching experiences on palliative care, I learnt about morphine and alternative opioids, about midazolam for restlessness, and antiemetics. I spent a day in a hospice, and although this was excellent for learning about pharmacological methods of treatment, my spiritual education was limited to a few minutes in a lecture theatre. The inconsistent amount of time given to medical students to consider the role of spirituality in healthcare perhaps reflects that spirituality itself is a slightly nebulous term. What is the relationship between good spiritual care and a good death? Does everyone need spiritual care or is it a reserve of the intensely religious? What actually does spirituality mean?
During my six weeks at the Cicely Saunders Institute, as well as going on ward rounds with doctors, nurses and social workers from the palliative care team, I spent time with the chaplains. I was particularly interested to discover that they would visit anyone who needed their services, religious or not. Their role very much depends on what is being asked of them, and varies from emotional counselling and prayer, through to discussing matters pertaining to spirituality. When the chaplains walked around the children and baby wards (a daily occurrence), they were not only greeting and exchanging pleasantries with the families of sick children, but letting the parents and family members know that they were there, just in case they were needed.
Having observed both the palliative care team and chaplains, I now recognise the need to build up a rapport with a patient before considering spiritual matters. Sometimes, such an approach can involve beginning at the “end” with the social history of the patient. This has been surprising for me: at medical school we are taught a certain, set-in-stone route for taking histories which has been drilled into our heads. Witnessing palliative care professionals undergoing a seamless transition from, what a lay person might see as idle chit chat and laughter, to a serious and intense discussion about the person’s final wishes, was illuminating. The use of anecdotes and entertaining stories (on one occasion this involved sharing tips on making homemade Baileys) came into their own during these conversations and enabled an easier transition to more serious matters.
The amount of palliative care education varies considerably throughout medical schools in the UK. According to surveys, the UK appears to flounder in terms of what we expect our junior doctors to be able to do, and what we are training doctors to do, at the end of life. I feel privileged to have been given the opportunity to spend time at the Cicely Saunders Institute. I hope that I will understand a little more about what to say and what to do when faced with the inevitable bleeps in my foundation years. No matter what, I have learnt a great deal about the care of people at the end of life that will serve me well in my future career as a doctor."