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New research finds that end of life care across England is not being prioritised

Research by a team at the Cicely Saunders Institute has found that local authorities have failed to prioritise palliative and end of life care, despite the health care challenges posed by a rapidly ageing population.

The research, published in the journal Palliative Medicineis based on an analysis of the Health and Wellbeing Strategies of 150 local authorities across England, which found that only 4 per cent cited end of life care as a priority.

To understand how England’s 152 local authorities - whose regional Health and Wellbeing Boards are responsible for improving health and care – prioritise end of life care, the team systematically analysed their Health and Wellbeing Strategies published from 2012 onwards. In two areas neighbouring Health and Wellbeing Boards developed a joint strategy, making the total number of strategies analysed 150.

Specific measures linked to end of life care were assessed, including; the level of prioritisation of end of life care; whether end of life care was referenced within a specific clinical context – such as in relation to cancer or dementia; whether a target for improvement was identified; and whether a specific intervention for improving end of life care was present.

The researchers found that of the 150 strategies identified, end of life care was mentioned in just over half 78 (52 per cent) and prioritised in only six (4 per cent).

In 43 of the 78 strategies, end of life care was mentioned in connection with specific medical conditions, with ageing and dementia the most cited.

The team also found that there was a sparse use of evidence in relation to end of life care, particularly with respect to the effectiveness of interventions.

Lead author Dr Katherine Sleeman said: ‘This is the first study to systematically analyse content relating to end of life care within local health care strategies and provides a comprehensive national picture of priorities and plans. 

“We found that while half of Health and Wellbeing Strategies mention end of life care, few prioritise it, and none cite evidence for effective interventions This is concerning, especially as end of life care has been highlighted as a priority for policy makers nationally and internationally.

“This research highlights the large variations in the prioritisation of palliative and end of life care across England and underscores the need for greater scrutiny of local health and care strategies to avoid the unintended creation of a palliative care post code lottery.’