ACCESSCare A
Led by Professor Richard Harding and Dr Katherine Bristowe, and funded by Marie Curie.
ACCESSCare A aimed to improve demand for and supply of palliative care for LGBT (lesbian, gay, bisexual and/or trans) people facing advanced illness.
The full paper from the ACCESSCare A study is freely available via open access from the Palliative Medicine website, HERE.
The ACCESSCare A project was designed to address inequity through:
A resource for LGBT people and others close to them on palliative and end-of-life care is freely available in two formats, either to download and print or to view online, below.
- Improving care delivery through the development and dissemination of education and training resources, and recommendations to improve care for LGBT people.
- Improved supply of appropriate end-of-life care through development of training resources for integration within existing end-of-life care curricula for health care professionals.
An e-learning course for health care professionals is coming soon, so WATCH THIS SPACE!
The project involved in-depth qualitative interviews with 40 LGBT people from across the UK who were in the later stages of a life-limiting illness, their informal caregivers (partners, friends or relatives), as well as with bereaved caregivers of people who died from a progressive illness or condition.
The ACCESSCare A study commenced in May 2014, and recruitment closed in January 2016. It was the first study in what is now a stream of research focussing on the needs and experiences of LGBT+ (lesbian, gay, bisexual, trans +) people facing serious illness, advanced illness and bereavement, and those close to them.
The ACCESSCare A Project was conducted in collaboration with the GMFA, the National Council for Palliative Care, and Hospice UK, and funded by Marie Curie.
All outputs and impact generated from the ACCESSCare research studies are detailed HERE.
Please get in touch with the ACCESSCare team for more information on accesscare@kcl.ac.uk