Led by Professor Richard Harding and Dr Katherine Bristowe, conducted by Dr Debbie Braybrook, and funded by the NIHR Research for Patient Benefit (RfPB) Programme.
ACCESSCare C explored the experience of communication between health and social care professionals and LGBT+ (lesbian, gay, bisexual and/or trans) people with serious illness about sexual orientation, gender identity and gender history.
Communication experiences in relation to sexual orientation, gender history and gender identity were explored with three participant groups:
- LGBT+ people with serious illness
- Significant others of LGBT+ people with serious illness (partners, friends, biological and chosen family), and
- Health and social care professionals.
The findings of the interviews were used to formulate evidence-based, best practice guidelines for healthcare professionals and educators looking to practice and promote patient-centred care inclusive of LGBT+ people and their significant others.
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If you would like to be added to the study mailing list please contact: email@example.com
Hear from members of the public who are part of our the ACCESSCare C PPI team on why this study is important to them.
SEE WHAT THEY SAID BY CLICKING HERE:
"Assumptions around a patient’s sexual orientation, gender identity or gender history puts the onus onto the patient to either come out and run the risk of a negative reaction from health and social care professionals, or to be closeted while in the care environment. In other words, it places an avoidable extra stress on the patient at precisely the time when they should be focusing on getting better or dying with dignity."
– Paul Clift, PPI Member, gay man
"I am delighted to be part of ACCESSCare C and to be able to contribute to this vital area of work. I have been employed in the public sector for most of my working life. I am on the Gendered Intelligence list of therapists. I worked in HIV services in a London local authority. I was a founder member of the Southwark LGBT Network.I am a member of the Guys Cancer Centre User Group and the South East London Cancer Research Panel. I make a nuisance of myself by asking about LGBT+ monitoring."
– Liz Day, PPI Member, queer lesbian and supporter of trans rights
"Huge distress can come from what is assumed by some to be the smallest of omissions. These matters have to be addressed seriously and with frankness that we will only know what our pathways need to incorporate after speaking with the very patients that are so affected."
– Ruth Rose, PPI Member, trans woman
The ACCESSCare C study commenced in June 2018, and finished in November 2020.
This study was conducted in collaboration with Stonewall, the LGBT Consortium, the National LGB&T Partnership, the LGBT Foundation, GMFA and HERO, and it is funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme.