Led by Professor Richard Harding and Dr Katherine Bristowe, conducted by Dr Debbie Braybrook, and funded by the NIHR Research for Patient Benefit (RfPB) Programme.
ACCESSCare C is exploring the experience of communication between health and social care professionals and LGBT+ (lesbian, gay, bisexual and/or trans) people with serious illness about sexual orientation, gender identity and gender history.
Communication experiences in relation to sexual orientation, gender history and gender identity will be explored with three participant groups:
- LGBT+ people with serious illness
- Significant others of LGBT+ people with serious illness (partners, friends, biological and chosen family), and
- Health and social care professionals.
We are recruiting for this study. Please get in touch for more information or to express an interest: firstname.lastname@example.org
The findings of the interviews will be used to formulate evidence-based, best practice guidelines for future use by healthcare professionals and educators looking to practice and promote appropriate patient-centred care for LGBT+ people.
Members of the public who are part of our the ACCESSCare C PPI team have expressed why it is important to them.
SEE WHAT THEY SAID BY CLICKING HERE:
"Assumptions around a patient’s sexual orientation, gender identity or gender history puts the onus onto the patient to either come out and run the risk of a negative reaction from health and social care professionals, or to be closeted while in the care environment. In other words, it places an avoidable extra stress on the patient at precisely the time when they should be focusing on getting better or dying with dignity."
– Paul Clift, PPI Member, gay man
"Huge distress can come from what is assumed by some to be the smallest of omissions. These matters have to be addressed seriously and with frankness that we will only know what our pathways need to incorporate after speaking with the very patients that are so affected."
– Ruth Rose, PPI Member, trans woman
The ACCESSCare C study commenced in June 2018, and is ongoing.
We are working closely with clinical teams to recruit to the ACCESSCare C study. These include King’s College Hospital NHS Foundation Trust, and Guy’s and St Thomas’ NHS Foundation Trust.
This study is conducted in collaboration with Stonewall, the LGBT Consortium, the National LGB&T Partnership, the LGBT Foundation, GMFA and HERO, and it is funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme.