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ACCESSCare

ACCESSCare Research


For LGBT+ (lesbian, gay, bisexual, trans +) people facing serious illness, advanced illness and bereavement, and those close to them.

 


Ten recommendations to improve care for LGBT people facing advanced illness

If you want to improve health and social care for LGBT people, this table lists ten straightforward, evidence-based recommendations for action, from our ACCESSCare A research study.

Ten recommendations for LGBT people facing advanced illness-Cropped-431x315Click HERE to open the the full research article, freely available via open access on the Palliative Medicine website.


Our research has also formed the basis of a guide for LGBT people facing advanced illness. It is freely available in two formats, either to download and print or to view online, below.


Research has shown that lesbian, gay, bisexual and/or trans (LGBT) people may not receive the care they need from health and social care professionals when facing serious illness, and have increased risk of certain life-limiting illnesses (Harding et al. 2012). Although LGBT people experience the same feelings of intense grief and pain when they lose a partner, they may also face additional stressors such as failure of others in acknowledging their relationship, homophobia, and additional legal and financial barriers (Bristowe, Marshall et al. 2016).

ACCESSCare is a series of projects seeking to respond to these problems, in order to improve the care for LGBT+ people experiencing a life-limiting or serious illness, advanced illness, or bereavement, and the support provided for their partners and those close to them.

Members of the public who are part of our PPI team have expressed why they think these research projects are important:

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"The results and outcome of the ACCESSCare mission will be important not only to the NHS, but also to thousands of older LGBT+ people who need to know that they will be respected and treated with compassion when they reach the end of their lives. Greater knowledge of what constitutes quality care, as opposed to just dealing with clinical needs, has to be researched and evaluated in detail for all diversity groups."                                                                                                         - Ruth Rose, PPI Member, trans woman

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"ACCESSCare is for the betterment of LGBT+ people, for their benefit at times in their lives when they are particularly vulnerable."             

 – Paul Clift, PPI Member, gay man


ACCESSCare B and ACCESSCare C are active research projects. ACCESSCare A and ACCESSCare Zimbabwe have been completed.

 


 

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Please get in touch with the ACCESSCare team for more information on accesscare@kcl.ac.uk

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