Meet the ACCESSCare team
Members of the ACCESSCare team at the Cicely Saunders Institute, Department of Palliative Care, Policy & Rehabilitation, King’s College London, include:
Professor Richard Harding - Chief Investigator
I have been volunteering and working in LGBT community health since the mid-1990s. I have been involved with Turning Point, GMFA and various community health projects for local authorities. My work with people with serious illness spans Europe, Asia and Africa. The ACCESScare programme of work is unique - we are proud to be taking the focus on LGBT health beyond the traditional fields of HIV, sexual health and mental health, and to look more widely at the serious illnesses that affect communities. I am very excited that this unique programme has been funded in the UK for lesbian women, gay men, bisexual and trans people. The support from the community and from health care professionals has been fantastic, and working together I believe we can truly improve care for LGBT people and their loved ones facing serious illness, and make sure that palliative and bereavement care is appropriate and accessible.
Dr Katherine Bristowe - Co-Chief Investigator
I am a Lecturer at the Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, with a background in sociolinguistics, and health communication and palliative care research. I have been working in palliative care research for eight years, and my research interests include: widening access to palliative care; communication in the context of advanced illness; bereavement experiences and outcomes; and development and testing of interventions to improve care and support through illness and in bereavement.
Dr Katherine Sleeman - Collaborator
I am a clinician and academic in palliative medicine, based at the Cicely Saunders Institute at King’s College London. My research focus is on the use of routine data to understand and improve end of life care, and end of life communication. I am also interested in the use of evidence in policy making around end of life care, and policy and public engagement.
Dr Liadh Timmins - Research Associate
I am a Research Associate at the Cicely Saunders Institute with a background in psychology, sexology, and the experimental analysis of human behaviour. I am the researcher employed on ACCESSCare B. My research interests include bereavement, minority stress, improving research methods, and the composition of sexual orientation and gender identity. I’m delighted to be working on a project that will bring attention to the experiences of LGB bereaved partners and provide insight into how service provision for this marginalised group can be improved.
Dr Debbie Braybrook – Research Assistant
Anna Roach – Research Project and Coordination Assistant
I am a Research Assistant at the Cicely Saunders Institute with a background in the sociology of health and illness, gender, sexuality, identities, and communication in relationships. I am the researcher employed on ACCESSCare C, and am interested in research that contributes to inclusive service delivery that is sensitive to intersectional needs, particularly where those intersections span multiple dimensions of social inequality. I am overjoyed to be working on a project that will highlight preferences for the way that health and social care professionals communicate with LGBT+ service users about sexual orientation, gender identity and gender history.
I am a Research Project and Coordination Assistant working across several studies at the Cicely Saunders Institute and I am the Research Coordinator for ACCESSCareB and ACCESSCareC. I recently completed my MSc in Genes, Environment and Development in Psychology and Psychiatry and worked on research investigating behavioural and biological predictors of Eating Disorders in adolescents at the IOPPN. My research interests lie in physical and mental health needs of children, young people and harder to reach groups and also in communication surrounding physical and mental illness. I really enjoy being involved in a variety of engaging research projects at the early stages of my research career.
The Extended Project Team
Professor Kathryn Almack – Professor of Health and Family Lives at the University of Hertfordshire
Professor Katherine Johnson – Professor and Director, Social & Global Studies Centre, RMIT, Australia, and Visiting Professor in the School of Applied Social Science and Centre for Transforming Sexuality & Gender at the University of Brighton.
Professor Michael King – Professorial Research Associate in the Division of Psychiatry, University College London
Dr Wei Gao – Senior Lecturer in Statistics and Epidemiology at the Cicely Saunders Institute, King’s College London
Dr Steve Marshall – Social Worker on the Palliative Care team at the Cicely Saunders Institute, King’s College London
Patient and Public Involvement Team Members & Community Representatives
Paul Clift, PPI Member, gay man
I am an HIV patient at King’s College Hospital, where I also provide peer support to people newly diagnosed with HIV. I work part time with several HIV community-based and activist organisations including UK Community Advisory Board and European AIDS Treatment Group. I also work with NHS England on a number of HIV projects including the Community Advisory Group for the Pre-Exposure Prophylaxis (PrEP) implementation study. I am particularly excited to be a member of the ACCESSCare team because it has potential to benefit LGBT patients when they are particularly vulnerable, when they are seriously ill and in hospital.
Liz Day, PPI Member, queer lesbian and supporter of trans rights
Ruth Rose, PPI Member, trans woman
I have been employed in the public sector for most of my working life. I worked in HIV services in a London local authority and was involved in training, policy, supervision. monitoring and direct services. I retired from working in the NHS in 2015 having been a family therapist in Child and Adolescent Mental Health Services. I was a founder member of the Southwark LGBT Network. I have been a volunteer counsellor with PACE and the Metro Centre. I am on the Gendered Intelligence list of therapists. I maintain a small private therapy and supervision practice. I am on the Advisory Board of Healthwatch Southwark. My partner of 34 years has stage 4 rectal cancer. I was diagnosed with breast cancer fifteen months ago at Kings. I am a member of the Guys Cancer Centre User Group and the South East London Cancer Research Panel. I make a nuisance of myself by asking about LGBT+ monitoring. I have a particular interest in bereavement and my partner and I have published a paper about our situation. I am delighted to be part of ACCESSCare C and to be able to contribute to this vital area of work.
As an active volunteer on committees dealing with National policies on older peoples' welfare, including the South East England Forum on Ageing (SEEFA) Executive Committee, the NHS England Older Peoples' Policy Advisory Panel, the AgeUK Policy Advisory Board, and the National Malnutrition Task Force Directive Committee, I bring in a breadth of non-clinical resource and knowledge. But more than that, I have a passion, derived from my own transgender status and 85-year age, to create genuine advances in personal care for all, and in particular for those whom society considers to be 'diverse'. ACCESSCare provides a route to use my links in politics, social reform and research to good advantage. It also supports my aim to establish an ethos of compassion and understanding in personal treatment and care that is wholly compatible with the clinical and emotional needs of those living with serious illness.
WANT TO FIND OUT MORE?
For further information about the ACCESSCare projects you can explore this website or get in touch with the ACCESSCare team via e-mail: firstname.lastname@example.org