C-CHANGE Patient and Public Involvement
The C-CHANGE project relies on dedicated Patient and Public Involvement (PPI) representatives to shape our research and ensure that care is improved for patients and families from all walks of life.
When developing and conducting research it is important to understand patient and carer needs and experiences to ensure that the quality of care for people with advanced illness and their families is actively improved. As part of their involvement in our research, C-CHANGE PPI members:
- Share views and experiences of care in advanced illness or rehabilitation
- Offer advice on how best to include patients, families, and the public in the research
- Help ensure that the research is carried out in an ethical and respectful way
We regularly hold meetings and workshops during which patients and carers who have first-hand experience of palliative care are invited to share ideas, link up with relevant research projects and lead discussions.
In the video here, Dr Fliss Murtagh, Principal Investigator of the C-CHANGE Project, and Jonathon Hope, patient representative, discuss how patient and public involvement influences ongoing research at the Cicely Saunders Institute.
We have created some videos with PPI members, to show how their PPI input has shaped the course of the project. These topics have emerged as important to our PPI group throughout the development of the project.
Additionally, we have produced a Project Information Leaflet which explains more about the project and the work that we do with PPI members. Please feel free to download this and circulate to anyone you think may be interested in getting involved or learning more about C-CHANGE.
You can also check out the latest C-CHANGE news and events by reading our most recent newsletter.
If you would like to be involved or would like more information, please contact:
Address: Patient and Public Involvement
Department of Palliative Care, Policy and Rehabilitation
Cicely Saunders Institute
Or visit our Cicely Saunders Institute PPI webpage:
http://www.kcl.ac.uk/lsm/research/divisions/cicelysaunders/patients/ppi.aspxInsert content here