International Access, Rights and Empowerment (IARE) II Study
What is the IARE II Study?
The IARE II study is a questionnaire study, looking at the symptoms, preferences, and healthcare use of older people who have recently had an unplanned hospital attendance. This is important because more people are living to an older age, and are becoming frail. More people are living, and dying with chronic illnesses. Whilst many older people cope very well, use of acute health services such as hospital is increasing. To adapt care to what is important to the growing number of frail older people, we need to understand peoples’ mental and physical healthcare needs, healthcare use, and also their preferences and wishes about healthcare.
Patients for this international study will be identified from hospitals in London, Dublin and New York.
The study has two parts:
In Part 1 we will ask frail older people (aged over 65 and measured as frail according to a widely used checklist) and their carers to provide written consent and then complete a series of questionnaires about their health problems and concerns, preferences, and use of healthcare services over a 6 month period. We will also interview some of the participants in greater depth to explore their preferences, experiences of illness and care and how these change.
Part 2 focuses on experiences at the end of life by asking bereaved carers of people aged over 65 who have died in hospital 4-10 months previously to complete a postal survey. The survey investigates the older person’s experiences, and the level of grief experienced by the carer.
Where are we recruiting from?
We are recruiting older people and their carers from inpatient, outpatient and community settings over 12 months.
Who is eligible?
- Patients aged >65
- Frailty score of 5 or more (on Clinical Frailty Scale)
- Patient with either:
- One or more unplanned hospital admissions in the last 6 months
- Two or more unplanned acute care attendances in the last 6 months
- Patients currently receiving specialist palliative care or having received specialist palliative care in the last 6 months. (Patients who see specialist palliative care after being recruited will not be excluded).
- Patients who lack capacity AND who do not have an identifiable family member who can provide proxy responses to the questionnaires.
Anna Bone, PhD Training Fellow 02078480128
Simon Etkind PhD Clinical Training Fellow 02078485638
Chifundo Stubbs Research Nurse 02032995242