COVID-19 is a pandemic emergency and palliative care has an important role in symptom management and support. The clinical, clinical academic and academic teams at the Cicely Saunders Institute are providing care and support, as well as gathering evidence in these difficult times. We have been approached for requests for resources and so we have developed this page to provide links to key sources of information and evidence.
As COVID-19 is a new disease, evidence is evolving rapidly and we suggest you frequently refer to this page for updated information and further resources, which will be added to as developments are made.
- We have created a resource to help people manage breathlessness at home. This resource:
- Is written for people with breathlessness and their families
- May be especially helpful for those with chronic heart and lung conditions, whose clinical teams are being diverted to the COVID effort
- Contains advice which is all based on the best available evidence and resources, but adapted to the COIVD context (shorted and tailored components)
- Harmonises with national guidance, e.g. from Association of Palliative Medicine and NICE, and can support its implementation with patient-directed tips and instruction.
This can be found here.
- EAPC: Coronavirus and the palliative care response
The EAPC have provided a useful page of resources which will be updated regularly. This consists of information from affected countries and important sources, including a list of palliative care related guidelines and publications.
- Centre to Advance Palliative Care (CAPC) COVID-19 Response Resources Toolkit
The CAPC has created a COVID-19 Toolkit which includes crisis communication and symptom management protocols for all clinicians. Resources will be continuously added to the site and palliative care teams can submit documented procedures and policies that they have developed.
- Self-management of breathlessness guide
Please see our guidance on self-management of breathlessness here, under the breathlessness support service toolkit: https://www.kcl.ac.uk/cicelysaunders/research/symptom/breathlessness
Please note, it is not advisable to use a fan currently due to the possibility of droplet spread.
- Bereavement guidance fom Cruise
Cruse Bereavement Care have produced some guidance on dealing with bereavement and grief in light of the current pandemic.
- Costantini M, Sleeman KE, Peruselli C, Higginson IJ. Response and role of palliative care during the COVID-19 pandemic: a national telephone survey of hospices in Italy
Our first paper on the experience of COVID-19 in Italy, examining the preparedness for and impact of the pandemic to inform the response of other countries, has come out in preprint:
Please see below for a list other, more generally useful links.
Hospital & Trust partners sites
Health related sites
Charities, Institutes and Centres
Journals and publications
Palliative care associations
Libraries / Publications:
UK and Ireland: