We have a highly successfully model of partnership that has flourished in East Africa (e.g. with the African Palliative Care Association, Kenyan Hospice Palliative Care Association, Palliative Care Association of Tanzania, University of Nairobi and BOMU Hospital) and Southern Africa (Universities of Cape Town and of the Witswaterand, the Hospice Palliative Care Association of South Africa and Governmental Health Departments). Building on our earlier work of evidence reviewing (LANCET
), and outcome measurement development (1) we have now moved to evidencing need and testing interventions (2). In 2013 we launched a new EC-funded programme (IMPAQT) transferring our outcomes and quality programme into primary and secondary care settings for COPD and heart failure patients in primary care and organ failure patients in acute care settings.
In 2013 we secured a King’s Health Partners/University of California, San Francisco visiting fellowship to establish global health links across research programmes and replicate our respective African/Indian programmes. In the field of academic global health we continue our partnership with the University of North Carolina/Futures Group delivering evidence to the US Government on the President’s Emergency Plan for AIDS Relief (PEPFAR), and provided expert evidence to PEPFAR to inform funding plans.
Within the Americas, we are part of the Canadian-UK HIV rehabilitation collaborative. The visiting fellowship to work alongside the National AIDS Office in Washington DC and Columbia University provided the evidence for the original PEPFAR plans. This involvement has continued in our PEPFAR evaluation roles with the FUTURES group and the University of North Carolina. The IARE project is a new North American partnership (see below), and we have our visiting programme with the University of California San Francisco (see above) enables us to expand both our HIV and cancer global programmes. Partnerships in Argentina (6) and Cuba (7) have led to the first data reporting outcome measurement, using locally validated POS.
The IARE study, part of project BuildCARE, also contributes to our Global Health Programme, generating comparative evidence across the cities of London, Dublin, New York and San Francisco to inform a sea-change in the delivery of palliative care to older people in these ageing populations. IARE is a collaboration between King’s College London, King’s College Hospital NHS Foundation Trust, Guy’s and St Thomas’ NHS Foundation Trust, Mount Sinai Medical Center, Beaumont Hospital, Mater Misericordiae University Hospital and the University of California, San Francisco. The study will provide data on the perspectives of both patients, their unpaid caregivers and staff. In this respect, it will bring us one step closer to an integrated working partnership across the country divides and regardless of differences in health structure and systems.
Our rehabilitation programme has developed costing and outcomes models under an NIHR programme grant and this model is now being used internationally to implement costing tariffs. We collaborate closely with Australian clinical academic services to advance the science of outcome measurement, and with the Australian Palliative Care Outcome Centre (PCOC).
Our pan-European studies have pioneered methodological development and co-ordination across leading clinical and academic centres. Our global health programme truly enhances these programmes, with transfer of lessons and expertise across regions. For example, the POS was developed in the UK at King’s College London then underpinned the PRISMA programme (funded by the EC under FP7), which included African partners plus 9 European partners. Lessons learned in African POS implementation were then shared in South-South exchange between African and Indian palliative care experts. Our European collaboration continues with Dr Barbara Gomes working to drive forward quality improvement of palliative care in Portugal, our breathlessness programme across the UK and Germany, and the EURO Impact programme (a Marie Curie Initial Training Network) which is creating the palliative care academics of the future.