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PPIE Advisory Group at HSCWRU
16 April 2019

Following the Unit’s recent Call for Applications to join the PPIE Advisory Group of the NIHR Policy Research Unit in Health and Social Care Workforce (HSCWRU) we are pleased to announce eight successful candidates have been appointed. Full details will be available on the website shortly. HSCWRU wish to thank the many applicants for their interest in supporting the important work of the Unit.

Homecare for people with dementia 
14 April 2019 

Although ‘the broader literature revealed three overarching themes: value of job role, emotional labour and poor information and communication […, t]he role of homecare workers supporting a person with dementia up to the end of life remains under-researched, with unmet needs for informational, technical and emotional support reported.’—from the abstract. See, from D’Astous and colleagues: ‘Gaps in understanding the experiences of homecare workers providing care for people with dementia up to the end of life: A systematic review.’ Dementia 18(3): 970-989. 

Supporting Patients with Dementia in the Acute Hospital 
14 April 2019 

Caroline Ashton and Jill Manthorpe conducted an ‘exploratory study aimed to investigate the experiences of domestic staff and porters working in an acute hospital setting who are in contact regularly with patients with dementia.’ The authors found, ‘The study suggests the need for improving the dementia-related knowledge and skills of all non-clinical staff especially those new to the NHS. The impact of witnessing dementia symptoms and distress on emotional well-being requires further research so that ancillary staff can improve the hospital stay of patients with dementia.’—from the abstract. Ashton, C. and J. Manthorpe (2019). "The views of domestic staff and porters when supporting patients with dementia in the acute hospital: An exploratory qualitative study." Dementia 18(3): 1128-1145. 

At the SSCR Annual Conference 
11 April 2019 

Kritika Samsi presented findings from her NIHR School for Social Care Research ‘Optimal Time’ project at the SSCR Annual Conference today. The study has been examining the question of the timing of moving into care homes for people with dementia. Several other HSCWRU researchers were at the conference.

Care Act and carers 
9 April 2019 

Support for carers following the Care Act 2014 is the focus of a NIHR Policy Research Programme study being undertaken by researchers at the London School of Economics and HSCWRU. Today the research team met with 12 local authority and carer organisation staff to debate the study’s emerging findings and policy options. The study recently published its first output—on the Care Bill parliamentary debates.

Policy module input 
9 April 2019 

At Imperial College today, Jill Manthorpe presented findings from Unit policy research to participants from a civil service leadership programme directed by Lord Darzi. Thirty participants discussed research and policy imperatives for drawing on the best scientific evidence to address policy questions and frame the options clearly.

Parliamentary debates on carers
8 April 2019

Out today: Manthorpe, J., et al. (2019). "Great expectations: ambitions for family carers in UK parliamentary debates on the Care Bill." International Journal of Care and Caring. Prof Manthorpe and colleagues 'describe the content of debates seeking to amend the law relating to carers and aspirations for the proposed reforms [...and...] highlight the role of parliamentary carer champions, as well as carer-related themes and the lack of controversy over this subject.'—from the abstract.

Ian Kessler on healthcare support workers 
5 April 2019 

Prof. Ian Kessler, Deputy Director of HSCWRU, today delivered a presentation on the findings from a small survey of healthcare support workers (172) on their training needs, to around thirty education and training managers from about ten different acute, mental health and community NHS trusts in North West London (The North West London Healthcare Support Worker Forum). The presentation stimulated a lively discussion on how the findings might feed into their trust deliberations on how to address the training needs of these workers, and how the forum itself might use and develop the data Prof. Kessler presented.

Jo Moriarty at the University of Kent
4 April 2019

Jo Moriarty gave a presentation and ran a workshop on carers for students on the University of Kent MA Social Work qualifying programme. Drawing on work undertaken by HSWCRU and other researchers, Jo highlighted the changing demographic trends that have highlighted the variety of caring relationships that exist and the need for services to adapt to these changes.  Jo said it was interesting to hear about students own experiences of supporting carers in practice and heartening to hear their commitment to meeting the needs of family carers. There were 17 students.

Marking 20 years of NICE: what is happening to its Social Value Judgements?



4 April 2019

Jill Manthorpe is co-signatory to a commentary in the Journal of the Royal Society of Medicine, marking 20 years since The National Institute for Health and Care Excellence was set up. “In 2005, as a way of publicly justifying its decision-making processes, NICE developed a statement of what it termed its ‘Social Value Judgements’. This was updated in 2008 when NICE acquired responsibilities for public health. In November 2018 NICE announced that it was updating its Social Value Judgements and has published a consultation document ‘The principles that guide the development of NICE guidance and standards.’ In their commentary, the group point to the remarkable absence of any specific commitments or reference to substantive social or ethical values in the revised NICE document. Substantive values present in the earlier versions – notably fairness, equality and respect for autonomy – have been dropped.”—from the JRSM press release. See also the rapid response in the BMJ.

Social Work England visits HSCWRU 
4 April 2019 

The Unit welcomed England’s new social work regulator Social Work England to its offices today. Chief Executive Callum Conway and Sarah Blackburn, Director of Standards, met Unit staff and local social work practitioners to discuss continuing professional development under the new regulator. 

New role research: nursing associates 
3 April 2019 

Representatives from the Department of Health and Social Care and Health Education England visited the Unit today to discuss the Unit’s new evaluation of the Nursing Associate role in health and social care services. 

DeCoDe-H Project 
3 April 2019 

Improving care for people with dementia in hospitals is the aim of a new research study entitled DeCoDe-H. This is exploring the development of ‘rule of thumb’ to promote comfort and decrease distress and is being supported by the Alzheimer’s Society. Today was the first meeting of the study team with its public and patient involvement (PPI) group. Unit Director Jill Manthorpe is part of the project team.

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