PPIE Advisory Group at HSCWRU
Formation of new PPIE Advisory Group announced
PRESS RELEASE: 9 May 2019
Professor Jill Manthorpe, Director of the NIHR Policy Research Unit on Health and Social Care Workforce (HSCWRU), is pleased to announce the formation of its new Patient and Public Involvement and Engagement (PPIE) Advisory Group which meets in London today (9 May 2019). A key focus of the Group’s work is to ensure research priorities are developed collaboratively, proposed research is asking questions that are important to people using health and social care services and that patients, service users and carers, and the public are involved throughout the process.
The HSCWRU PPIE Advisory Group, chaired by Pida Ripley, comprises eight members, Tom Duffy, Jane Hopkins, Mick Jones, Dolapo Ogunleye, Keymn Whervin, Mary Amos, Andrew Carpenter - drawn from across England and tasked to provide support and challenge. Advisory Group meetings will take place at least three times a year where particular research topics and the progress of specific projects will be discussed.
The Group aims to support the HSCWRU undertake relevant research of the highest quality. It will offer advice on research priorities from valuable ‘expert by experience’ perspectives, share ideas relating to individual projects and the Unit’s work programme. Generally it will be acting as a ‘critical friend’ and helping to share good ideas and practice.
“My colleagues on the Advisory Group join me in feeling extremely privileged to be involved in delivering the unique perspective of patients, service users and carers to the important research undertaken by the NIHR Health and Social Care Workforce Research Unit. Throughout this 5-year NIHR funded programme we will seek to ensure proposed research is asking relevant questions that are important to both the workforce and patients.
By implementing the new National Standards for Public Involvement in Research, we will assess and improve the quality of public involvement at the HSCWRU. Our vision is to achieve meaningful involvement activities throughout the research cycle and thereby contribute to the production and dissemination of research of the highest quality and relevance.”
Pida Ripley, Unit PPIE Lead & Chair PPIE Advisory Group.
During the NIHR 5-year programme, the HSCWRU with its PPIE Advisory Group will monitor the impact of expert by experience and public involvement within the Unit. It will do this by implementing the six National Standards for Public Involvement developed by NIHR INVOLVE. It plans to use these Standards to measure areas of both strength and weakness, and identify impact by capturing feedback from both researchers, other stakeholders and PPIE representatives. INVOLVE’s quality standards for public, patient and carer involvement will also be reflected in Unit activities such as events and social media.
Over the past few decades public involvement has been growing as a powerful movement in UK health and social care research. Service user, patients and carers offer the voice of experience and a unique perspective that helps make research findings impactful and authentic. The UK has set an international imperative for the involvement of patients, service users, carers and the public to be involved at the earliest stage of research thinking, prioritisation, and planning. The aims and assumptions of policy makers, managers and practitioners may be usefully challenged through the PPIE ‘critical friend’ process and improvements made as a result.
The HSCWRU with its PPIE Advisory Group look forward to supporting the whole health and social care sector in the coming 5 years by offering evidence, accessible findings, and refining key questions.