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Developing capacity

CAREDEM trial

Purpose

This pragmatic randomised controlled trial evaluated the effectiveness and cost effectiveness of Collaborative cARE for people with DEMentia in primary care (CAREDEM).
This study developed a Collaborative Care intervention for primary care use, designed to reduce behavioural and psychological distress in people with dementia.

Timescale

2011 – 2013 (finished 2014)

Research team

Jill Manthorpe (SCWRU) was a co-investigator and worked with the research teams at the Universities of Newcastle and of East Anglia, the LSE and University College London in the development of this study and with partners at Dementia UK.

Funding

NIHR Health Technology Assessment Programme

Methods

This study developed learning resources for evidence based care pathways for dementia care and workplace training methods to facilitate implementation of the Collaborative Care intervention. This intervention was piloted in two areas to assess its feasibility. The study adapted methods used in the US PREVENT trial to the circumstances of the UK. A multidisciplinary expert group reviewed the PREVENT care pathways. People with dementia, carers, and health and social care professionals, helped develop the Collaborative Care intervention, customised the care pathways and shaped the training package. Among this group were members of the Unit’s User and Carer Advisory group.

Findings

The results of the developmental phase and pilot study were used to consider whether it was worth developing a full trial of a case management intervention for people with dementia. It was concluded that this was not feasible.

Outputs and impact

The full evaluation of the pilot was published by the NIHR in 2014 as a research monograph and articles continue to be published. The pilot study and feasibility study have added to the evidence base about dementia support services and practice.

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