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Outcomes in advocacy for people with learning disabilites

Purpose

This project sought to determine whether a consensus might be achievable on the key indicators for advocacy, to identify outcomes and to learn from the variety of models operating in the UK and internationally. 

Research team

Jill Manthorpe
Shereen Hussein
Joan Rapaport
Jean Collins (Values into Action)

Funding

Department of Health

Background

Over the past decades a number of models of advocacy have emerged, with developments in support for people with learning difficulties generally in advance of other areas. Questions have emerged about ways to assess the outcomes of different models and future developments in advocacy. This project was conducted in association with the voluntary sector group Values into Action.

Methods

The project’s methodology included a literature review, together with contact with advocacy organisations, service users, professionals and organisational stakeholders, to build an evidence base on the outcomes of advocacy and to suggest future avenues for development, evaluation and practice development.

Timetable

2005 - 2006

Output

Report
Manthorpe, J., Rapaport, J., Hussein, S., Moriarty, J. & Collins, J., (2005), 'Advocacy and People with Learning Disabilities: Local Authority Perceptions of the Scope of its Activity, Extent and Effectiveness. A Report to the Department of Health' [pdf, 421 KB], Social Care Workforce Research Unit, King's College London.

Manthorpe, J., Rapaport, J., Hussein, S., Moriarty, J. & Collins, J., (2005), 'Advocacy and People with Learning Disabilities: Local Authority Perceptions of the Scope of its Activity, Extent and Effectiveness. Executive Summary' [pdf, 35 KB], Social Care Workforce Research Unit, King's College London.

Articles
Hussein, S., Rapaport, J., Manthorpe, J., Moriarty, J. & Collins, J., (2006), 'Paying the piper and calling the tune? Commissioners' evaluation of advocacy services for people with learning disabilities', Journal of Intellectual Disabilities, 10(1): 75-91.

Rapaport, J., Manthorpe, J., Hussein, S., Moriarty, J. & Collins, J., (2006), 'Old issues and new directions: perceptions of advocacy, its extent and effectiveness from a qualitative study of stakeholder views', Journal of Intellectual Disabilities, 10(2): 191-210.

Rapaport, J., Manthorpe, J., Moriarty, J., Hussein, S. & Collins, J., (2005), 'Advocacy and people with learning disabilities in the UK. How can local funders find value for money?', Journal of Intellectual Disabilities, 9(4): 299-319. 

Related work
Stevens, M., (2006), 'Moral positioning: service user experiences of challenging behaviour in learning disability services', British Journal of Social Work, 36(6): 955-978.
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