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The Data and Connectivity National Core Study

Lara will discuss the work done by the National Core Study Data and Connectivity programme which aims to address the current fragmentation of the UK data infrastructure by working in partnership with stakeholders from across the four nations to organise medical, biological and social science data on an unprecedented scale and complexity. The programme is led by Health Data Research UK (HDRUK), in partnership with the Office for National Statistics (ONS), and has enabled streamlined, secure access to data for vital COVID-19 research across the UK Trusted Research Environment (TRE) network. Lara will outline which data assets are now available, how researchers can access the data, how researchers can make more widely available their data assets, and how the programme has worked to inform the UK COVID-19 policy response.

About the speaker

Lara Edwards is a Senior Programme Manager for National Core Study Data and Connectivity at Health Data Research UK. Lara’s role is to ensure the successful development and delivery of the Data and Connectivity work programme, by working closely with study leads at HDR UK, TRE network delivery partners, Office for National Statistics, co-ordinating study activities and managing progress across a complex programme of activities delivered in partnership with key national organisations.

About the seminar series 

The Cicely Saunders Institute Open Seminar Series events are free to attend and there is no need to register.

This seminar is worth CPD (1 credit) pending from the Royal College of Physicians.

The series aim is to optimise opportunities for local, national and international networking within palliative care and rehabilitation. We facilitate seminars to assist in improving practice, education and policy, and the integration of research and clinical endeavours.