The response we have received to the online survey has been incredible. The data have provided insight into the impact of COVID-19 on hospice and palliative care services. This has enabled us to understand how these services have adapted and responded innovatively to the pandemic.Rachel Cripps, paper co-author and Research Projects & Coordination Assistant
01 April 2021
How specialist palliative care services have coped in response to COVID-19
Services have been highly adaptive and embraced low-cost innovations during the pandemic.
Specialist palliative care services have been flexible, highly adaptive and have embraced a low-cost ‘frugal innovation’ model in response to the COVID-19 pandemic say researchers.
The CovPall study, published in Palliative Medicine, is a collaborative project between the Cicely Saunders Institute at King’s College London, Lancaster University, Hull York Medical School and the University of York.
It aims to understand the multinational specialist palliative care response to COVID-19 through an online survey of more than 450 hospice and specialist palliative care providers.
As part of the research, Lesley Dunleavy, Professor Catherine Walshe and Professor Nancy Preston from the International Observatory on End of Life care at Lancaster University led on mapping and analysing the types of innovations and practice changes made by specialist palliative care services in response to the pandemic.
- creating a single point of access for patients, family carers and health care professionals,
- using communication technology to provide clinical care
- developing COVID-19 symptom control guidelines and providing training in end-of-life care.
Services reported a number of challenges and concerns when responding to the pandemic that included working within a climate of heightened fear and anxiety, a lack of IT infrastructure, how to sustain out of hours cover without adequate funding and how to keep abreast of the ever-changing situation. There was evidence that services sometimes duplicated guideline and policy development.
The study highlighted that specialist palliative care services need better financial support but also need to build organisational resilience and drive forward innovation through greater collaboration to manage the impact of the COVID 19 pandemic or any future crisis.
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Laing Galazka Chair in Palliative Care, Honorary Consultant in Palliative Medicine