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11 July 2018

Palliative Care Clinical Academic Group publishes first outcomes book

The Cicely Saunders Institute ranks #1 in Europe and #2 in the world for research citations in palliative and end of life care.

Man sitting on bench outside holding hand of woman in a wheelchair

King’s Health Partners has published the first outcomes book from our Palliative Care Clinical Academic Group (CAG).

The Palliative Care CAG leads research, treatment and care for patients with progressive illness and ensures high quality palliative and end-of-life care is available to everyone who needs it, in hospice, hospital or at home.

Palliative care is the active total care of patients with life-limiting or life-threatening illnesses. The goal of palliative care is the achievement of the best possible quality of life for patients and those important to them. The CAG includes the Cicely Saunders Institute which is the world’s first purpose-built institute of palliative care integrating research, education and clinical practice in clinical care.

Read the Outcomes Book

The Palliative Care CAG Outcomes Book is available on the King's Health Partners website.

Highlights from the book include:

  • Developing research, with almost a quarter of the top 10% of most cited palliative care papers globally including research from King’s Health Partners. The CAG is rated top in Europe for research output in palliative care and second in the world, after Harvard (p.89)
  • Progressing on diversity and inclusion, including leading on research to determine whether there is an attrition of women along the academic pipeline in palliative care. The findings directly prompted the European Association of Palliative Care (EAPC) to routinely collect and analyse gender information to help drive equality (p.23)
  • Measuring clinical outcomes, including developing and improving the Palliative Care Outcome Scale (POS) family of measures, to capture changes in symptoms and quality of life experienced by patients (p.28). Read our Value Based Healthcare case study on POS
  • Growing clinical services with approximately 5,000 patients being seen per year across the CAG. Data also showed that palliative care symptoms and concerns have improved across the CAG (p.38/43)
  • Supporting patients, families and staff through a range of activities, facilities and support, including dedicated resources for children, talk back and debriefing sessions, Dying Matters events and more (p.59)
  • Pioneering and evaluating new models of care and interventions, including a breathlessness support service which has increased quality of life for patients with advanced diseases by integrating palliative and respiratory care (p.64)
  • Successes in education and training, including the CAG’s Master of Science (MSc) in Palliative Care which is the longest running multi-professional research-based programme in the world (p.73)
  • Adding patient experience to clinical and research perspectives through a range of activities including patient and public involvement (PPI) workshops, which allow clinicians and researchers to present research to PPI panels and gain feedback (p.84)

Congratulations to the Palliative Care CAG on publishing their first outcomes book. King’s Health Partners has a strong legacy of palliative care. Our new CAG is an ideal platform to achieve more for those affected by life limiting and threating illness, wherever they are cared for. The book demonstrates the great progress the CAG has already made, and will continue to make, in driving clinical, education and research activities to deliver better patient outcomes in palliative care.

Professor John Moxham, Director of Clinical Strategy for King’s Health Partners

We are delighted to have produced this book in the centenary year of Cicely Saunders' birth. Palliative care affects everyone in society and has much to offer health and social care now and in the future. We look forward to working collaboratively across King’s Health Partners, building on our already significant achievements.

Professor Irene Higginson, Director of the Cicely Saunders Institute

This article was originally published on the King's Health Partners website and has been reproduced with their permission.

In this story

Irene Higginson

Executive Dean, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care