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Law

Between Deception & Dissent

Regulating unproven, disproven & misleading health-related claims

‘Misinformation’, we are often told, is everywhere. In recent years, there has been significant policy attention to regulation of unproven, disproven or misleading health-claims, and their potentially harmful effects.

Concerns span areas as diverse as mental health, reproductive health, weight loss and life-threatening diseases. Controversial claims can originate from a range of groups and individuals, including social media influencers, the wellness industry, religious lobbies or political figures.

But not all contested claims are equally problematic. Claims that challenge consensus, or are difficult to prove, can sometimes constitute legitimate dissent or lead to new knowledge. Governments and others make a range of decisions about which types of claims are tolerable, which are seen as legitimate, and which are deemed so harmful or problematic that they require intervention. Yet, we know very little about how and why these decisions are made, nor about the ways in which they are implemented.

This project aims to explore how lines of regulatory tolerance and intervention are drawn, in different states, through which legal or regulatory techniques, and to what effect, is at the core of our 6-year project.

The co-investigators of this project are: 

  • Professor Caesar Atuire (University of Ghana)
  • Professor Mairead Enright (Loughborough University)
  • Dr Phoebe Friesen (McGill University)
  • Professor Patricia Kingori (University of Oxford)
  • Professor Tidiane Ndoye (University Cheik Anta Diop)
  • Professor Martyn Pickersgill (University of Edinburgh)
  • Dr Nayeli Urquiza-Haas (Lancaster University)

Events 

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Aims

Bringing together perspectives from socio-legal studies, science and technology studies (STS), and philosophy our project will critically explore regulatory approaches and their unfolding impacts in three regions: Europe (France/Greece/Ireland/UK), West Africa (Ghana/Senegal), and North America (Canada/Mexico).

We aim to produce in-depth and comparative knowledge of the making of legal (in)tolerance, and an understanding of its socio-cultural and political dimensions, and in each case study and as a whole, to address the following questions:

• How do laws and regulations formally define the boundaries of acceptability of unproven, disproven, or misleading health-related claims?

 • How is the regulation of unproven, disproven, or misleading health-related claims enacted and resisted in practice?

 • What are the effects of different forms of regulatory intervention, and what alternatives could be imagined?

Our Partners

 University of Ghana

University of Ghana

Loughborough University

Loughborough University

University of Oxford

University of Oxford

Université Cheikh Anta Diop de Dakar

Université Cheikh Anta Diop de Dakar

University Lancaster logo

Lancaster University

Project status: Ongoing
BDD Black1

Principal Investigator

Investigators

Funding

Funding Body: Wellcome Trust

Amount: £4.7 million

Period: May 2025 - April 2031

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Keywords

HEALTH MISINFORMATIONALTERNATIVE HEALTH MOVEMENTSCONTESTED HEALTH CLAIMSSOCIO-LEGAL STUDIES