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Big & Routine Data-Based Palliative & End of Life Care Research

The big data research projects include a range of research studies that use large-scale routinely collected datasets (including structured and unstructured datasets) to explore various end-of-life outcomes and to generate evidence to enable policymakers, commissioners, and healthcare professionals to use them directly in their decisions to improve palliative and end-of-life care. These research studies include: 

  • Geographical variations in multimorbidity clusters and their impact on health, services and costs using the National Death Registration database
  • End of life care for patients with serious mental disorders using the Mental Health Services Data set
  • The impact of COVID-19 pandemic on health and social care services using the Clinical Practice Research DataLink (CPRD-COVID Project)
  • Identifying avoidable hospitalisations at the end of life using electronic health records





PHE logo

Public Health England


Care Quality Commission (CQC)

Project status: Ongoing


Emeka Chukwusa

Research Associate


Martin Gulliford

Professor of Public Health

Irene Higginson

Irene J Higginson

Executive Dean, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care


  • Palliative
  • Care
  • Social
  • Health
  • Informatics
  • Statistics
  • Big
  • Routine
  • Data
  • Real
  • World
  • Records
  • Death
  • Registry
  • Statistics
  • Multimorbidity
  • Inequality