Publications
Coombes L, Wiseman T, Lucas G, Sangha A and Murtagh F (2016). Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use. Palliative Medicine, 30 (10); 935-949. https://journals.sagepub.com/doi/full/10.1177/0269216316649155
Harding R, Chambers L and Bluebond-Langner (2019) Advancing the science of outcome measurement in paediatric palliative care. International Journal of Palliative Nursing, 25 (2); 72-79. https://doi.org/10.12968/ijpn.2019.25.2.72
Namisango, E., Bristowe, K., Allsop, M. J., Murtagh, F. E., Abas, M., Higginson, I. J., ... & Harding, R. (2019). Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: A systematic review highlighting meaningful health outcomes. The Patient-Patient-Centered Outcomes Research, 1-41 https://link.springer.com/article/10.1007/s40271-018-0333-5
Namisango, E., Bristowe. K., Murtagh, F., Downing, J., Powell, R., Abas, M., ... & Harding, R. (2020). Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study. Palliative Medicine, 34 (3); 319–335. https://journals.sagepub.com/doi/abs/10.1177/0269216319900137
Coombes, L., Roach, A., Bristowe, K., Ellis-Smith, C., Bluebond-Langner, M., Downing, J., Braybrook, D., and Harding, R. (2020). Priority outcomes for children and young people with life-limiting conditions: an in-depth qualitative interview study. Abstracts from the 11th EAPC World Research Congress Online, 7th – 9th October 2020. Palliative Medicine, 34(1_suppl), pp.165. https://doi.org/10.1177/0269216320958098
Coombes, L., Bristowe, K., Ellis-Smith, C., Downing, J., Bluebond-Langner, M., Fraser, L., Chambers, L., and Harding, R. (2020). Maximising participation in patient reported outcome measures (PROMs) for children and young people: a systematic review of optimal recall period, response format and administration mode. Abstracts from the 11th EAPC World Research Congress Online, 7th – 9th October 2020. Palliative Medicine, 34(1_suppl), pp.172 https://doi.org/10.1177/0269216320958098
Roach, A., Braybrook, D. and Marshall, S. (2021) ‘Reflective insights from developing a palliative care children and young people’s advisory group’, Palliative Medicine, 35(3), pp. 621–624. https://doi.org/10.1177/0269216320976035
Coombes, L., Bristowe, K., Ellis-Smith, C., Aworinde, J., Fraser, L. K., … & Harding, R. (2021). Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Quality of Life Research. https://doi.org/10.1007/s11136-021-02814-4