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Health

Co-designing interventions to improve the experiences of children and young people taking part in eye and vision research using experience-based co-design

Ci2i project: Co-designing interventions to improve the experiences of children and young people taking part in eye and vision research using experience-based co-design.

Children and young people are invited to take part in vital eye and vision research to enable the development of safe, effective, and acceptable treatments and care. This project focuses on the quality of eye and vision research delivery for this young population, which should be child and family-centred, leading to positive experiences with valid and credible results. Families who have taken part in eye and vision research at Moorfields Eye Hospital and research staff will be invited to join.

The research methods of experience-based co-design (EBCD) have been chosen to enable children and young people, parents/guardians and staff to share their views about what is important to their research experiences, then work together to design ways to improve. Advisory groups, including children and young peope, have helped shape the project design of this National Institute for Health Research and Moorfields Biomedical Research Centre funded project. The findings will contribute to improving children and young people’s vision-related health by improving the way we research it.

Aims

•    To identify and understand which aspects of the paediatric eye and vision research experience are working well and where improvements can be made

•    To co-design improvement interventions with children and young people, parents/guardians and staff

•    To evaluate the project methods used (experience-based co-design)

 •    To assess how feasible the co-designed intervention(s) are, deciding which to take forward for subsequent evaluation. 

•    To recommend appropriate research design and outcome measures for a subsequent evaluation project. 

Methods

The project will use the participatory approach of experience-based co-design methodology.

Phase 1:

Stage 1 – we will observe the research visits of children

Stage 2 – includes filmed interviews with families (children and young people & parents/guardians) and staff to explore their experiences of eye and vision research. Two meetings will follow, to agree on improvement priorities.

Stage 3 –families and staff will work together to design (co-design) ideas or solutions (interventions).

Phase 2: An evaluation of the project methods and experiences (experience-base co-design toolkit); four questionnaires are built into the experience-base co-design toolkit framework.

Phase 3: Multiple stakeholders, including children and young people, parents/guardians and health professionals with relevant expertise, will assess how feasible the co-designed intervention(s) are, and make recommendations for a future evaluation study.

Publications

Miller, J, Curtis-Tyler, K, Maden, M. et al. Paediatric eye and vision research participation experiences: a systematic review. Trials 24, 66 (2023). https://doi.org/10.1186/s13063-022-07021-1

Phase 1:

Stage 1 – we will observe the research visits of children

Stage 2 – includes filmed interviews with families (children and young people & parents/guardians) and staff to explore their experiences of eye and vision research. Two meetings will follow, to agree on improvement priorities.

Stage 3 –families and staff will work together to design (co-design) ideas or solutions (interventions).

Phase 2: An evaluation of the project methods and experiences (experience-base co-design toolkit); four questionnaires are built into the experience-base co-design toolkit framework.

Phase 3: Multiple stakeholders, including children and young people, parents/guardians and health professionals with relevant expertise, will assess how feasible the co-designed intervention(s) are, and make recommendations for a future evaluation study.

Publications

Miller, J, Curtis-Tyler, K, Maden, M. et al. Paediatric eye and vision research participation experiences: a systematic review. Trials 24, 66 (2023). https://doi.org/10.1186/s13063-022-07021-1

Project status: Starting
ci2ilogo

Principal Investigators

Investigators

Funding

Funding Body: The NIHR Moorfields Biomedical Research Centre (BRC)

Amount: £112,694.00

Period: February 2023 - October 2024

Keywords

CHILDRENOPHTHALMOLOGYEYEVISIONQUALITY IMPROVEMENTCO-PRODUCTIONCO-DESIGN