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IBD-BOOST Programme

IBD Boost

Fatigue, pain and urgency are a huge burden for many people living with inflammatory bowel disease and can persist even when in remission. IBD-BOOST aims to develop and evaluate ways to improve the well-being of people who experience them.

Inflammatory Bowel Disease (IBD) affects 300,000 people in the UK alone, causing unpredictable bouts of gut inflammation, with acute illness, diarrhoea, and pain. There is no current cure for IBD, which usually starts in childhood or as a young adult. IBD research has mostly focused on controlling inflammation. However, many people report continuing IBD-related fatigue, abdominal pain and urgency (urgent need to use the toilet) and incontinence when in remission. These symptoms limit peoples’ quality of life and ability to work and socialise.

Our research programme focuses on the development and evaluation of management interventions to improve the well-being of people with IBD by relieving these most common and troublesome chronic symptoms and enhancing quality of life.

The IBD-BOOST Programme is led by Christine Norton, Professor of Nursing in the Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care at King's. The programme co-investigators include academics, clinicians, people living with IBD and members of Crohn’s and Colitis UK.

 Find out more about our individual studies in the projects tab below

Members

Wladzia Czuber-Dochan
Christine Norton

Christine Norton

Professor

Jonathan Syred

Programme Manager, IBD-Boost

IMG_0397

The IBD-BOOST Survey

The IBD-BOOST Survey aims to describe the inter-relationship of the symptoms, their prevalence and associations with quality of life, depression, anxiety, disease activity, disease history and demographic and lifestyle factors.

The IBD-BOOST Survey: Information for participants

IDB Boost

The IBD-BOOST Optimise Study

IBD-BOOST Optimise is a non-randomised experimental study to test the effectiveness of a checklist and nurse-led algorithm for identifying and treating medical causes of IBD-related symptoms of fatigue, pain and urgency.

BOOST

The IBD-BOOST TRIAL

A randomised control trial of an interactive online symptom management programme with nurse support. The ’BOOST’ programme has been designed by psychologists at King’s College London as well as people with IBD and based on the principles of cognitive behavioural therapy.

Targets for interventions for faecal incontinence in inflammatory bowel disease: a systematic review Proudfoot, H., Norton, C., Artom, M., Didymus, E., Kubasiewicz, S. & Khoshaba, B., 22 Jan 2019, In : Scandinavian Journal of Gastroenterology. 53, 12, p. 1476-1483

IDB Boost

How you can get involved with our work

We are looking for volunteers to help us with various patient and public involvement (PPI) activities across our research programme. These vary from roles you can do at home such as proof reading materials we create such as leaflets and posters and providing feedback via email, to more hands on roles such as helping us run groups, being a patient advocate etc. The amount of time you wish to give is entirely up to you, and we can refund all expenses such as travel and food. If this sounds like something you might be interested in, get in touch with us to find out more by emailing us at ibd-boost@kcl.ac.uk

Project members

Chief investigator

  • Professor Christine Norton, King's College London

Co-investigators

  • Professor Qasim Aziz, Queen Mary University of London
  • Dr Wladzia Czuber-Dochan, King's College London
  • Dr Lesley Dibley, University of Greenwich
  • Professor Alisa Hart, St Mark's Hospital
  • Sally Kerry, Queen Mary University of London
  • Dan McLean, Crohn's & Colitis UK
  • Professor Borislava Mihaylova, Queen Mary University of London
  • Professor Rona Moss-Morris, King's College London
  • Dr Richard Pollock, St George's University Hospitals NHS Foundation Trust
  • Professor Sonia Saxena, Imperial College London
  • Professor Stephanie Taylor, Queen Mary University of London
  • Helen Terry, Crohn's & Colitis UK 

Research team

  • Jonathan Syred, Programme Manager, King's College London
  • Laura Miller, Trial Coordinator, Queen Mary University of London

Intervention development team

  • Louise Sweeney, Intervention Lead
  • Sophie Fawson, Research Assistant

Our partners

IBD-BOOST is funded by the National Institute of Health Research and hosted by London North West Healthcare NHS Trust. The research is conducted by King’s College London in partnership with Queen Mary University of London, NHS Trusts and Crohn’s & Colitis UK.

National Institute for Health Research

London North West University Healthcare NHS Trust

Pragmatic Clinical Trials Unit

Crohn's and Colitis UK

Contact us

0207 848 3318

IBD-BOOST
King’s College London
James Clerk Maxwell Building
57 Waterloo Road
London SE1 8WA

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