Co-investigator on the IBD-BOOST Programme
Co-investigator on the IBD-BOOST Programme
IBD-BOOST Patient and Public Involvement Lead
IBD-BOOST Patient and Public Involvement Lead
Co-investigator on the IBD-BOOST Programme
Co-investigator on the IBD-BOOST Programme
Co-investigator on the IBD-BOOST Programme
Co-investigator on the IBD-Boost Programme
Programme Manager, IBD-BOOST Programme research team
Professor of Psychology as Applied to Medicine
Professor of Clinical Nursing Research
Co-investigator on the IBD-BOOST Programme
Co-investigator on the IBD-BOOST Programme
Research Nurse on IBD-BOOST programme
Co-investigator on the IBD-BOOST Programme
The IBD-BOOST Survey
The IBD-BOOST Survey aims to describe the inter-relationship of the symptoms, their prevalence and associations with quality of life, depression, anxiety, disease activity, disease history and demographic and lifestyle factors.
IBD-BOOST Survey
The IBD-BOOST Optimise Study
IBD-BOOST Optimise is a non-randomised experimental study to test the effectiveness of a checklist and nurse-led algorithm for identifying and treating medical causes of IBD-related symptoms of fatigue, pain and urgency.
IBD-BOOST Optimise
The IBD-BOOST TRIAL
A randomised control trial of an interactive online symptom management programme with nurse support. The ’BOOST’ programme has been designed by psychologists at King’s College London as well as people with IBD and based on the principles of cognitive behavioural therapy.
IBD-BOOST Trial
Targets for interventions for faecal incontinence in inflammatory bowel disease: a systematic review
Proudfoot, H., Norton, C., Artom, M., Didymus, E., Kubasiewicz, S. & Khoshaba, B., 22 Jan 2019, In :
Scandinavian Journal of Gastroenterology. 53, 12, p. 1476-1483
Sweeney, L., Windgassen, S., Artom, M., Norton, C., Fawson, S., & Moss-Morris, R. (2022). A Novel Digital Self-management Intervention for Symptoms of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease: Describing the Process of Development. JMIR Formative Research, 6(5), e33001.
Sweeney, L., Moss-Morris, R., Czuber-Dochan, W. et al. Pain management in inflammatory bowel disease: feasibility of an online therapist-supported CBT-based self-management intervention. Pilot Feasibility Stud 7, 95 (2021).
Matthias C, Fawson S, Yan L, Sweeney L, Moss-Morris R, Norton C. Inflammatory bowel disease nurses' views on taking on a new role to support an online self-management programme for symptoms of fatigue, pain and urgency: a qualitative study to maximise intervention acceptance. Gastrointestinal Nursing. 2021;19(9):28-35.
Norton C, Syred J, Kerry S, Artom M, Sweeney L, Hart A, et al. Supported online self-management versus care as usual for symptoms of fatigue, pain and urgency/incontinence in adults with inflammatory bowel disease (IBD-BOOST): study protocol for a randomised controlled trial. Trials. 2021;22(https://doi.org/10.1186/s13063-021-05466-4).
Fawson S, Dibley L, Smith K, Batista J, Artom M, Windgassen S, et al. Developing an online programme for self-management of fatigue, pain and urgency in inflammatory bowel disease: patients’ needs and wants Digestive Diseases and Sciences. 2021;https://doi.org/10.1007/s10620-021-07109-9.
Dibley L, Khoshaba B, Artom M, Van Loo V, Sweeney L, Syred J, et al. Patient strategies for managing the vicious cycle of fatigue, pain and urgency in Inflammatory Bowel Disease: impact, planning and support. Dig Dis Sci. 2021;doi: 10.1007/s10620-020-06698-1:3330-42.
IBD-BOOST at ECCO 2020
IBD-BOOST presented the findings of the symptom self-management intervention development at the European Crohns and Colitis Organisation (ECCO) Annual conference in Vienna. Three posters were also accepted. These included
(i) Patient-identified symptom management techniques to inform the content and functionality of an online self-management programme: an exploratory qualitative study.
(ii) Developing a digital self-management intervention for symptoms of fatigue, pain and urgency in inflammatory bowel disease
(iii) Pain management in inflammatory bowel disease: feasibility of an online therapist-supported CBT self-management intervention
How you can get involved with our work
We are looking for volunteers to help us with various patient and public involvement (PPI) activities across our research programme.
These vary from roles you can do at home such as proof reading materials we create such as leaflets and posters and providing feedback via email, to more hands on roles such as helping us run groups, being a patient advocate etc.
The amount of time you wish to give is entirely up to you, and we can refund all expenses such as travel and food.
If this sounds like something you might be interested in, get in touch with us to find out more by emailing us at ibd-boost@kcl.ac.uk
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November 2017: Programme Begins
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February 2018: ‘BOOST’ Intervention development to begin
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February 2019: IBD-BOOST Survey open to recruitment
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June 2019: ‘BOOST’ Intervention Development complete
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December 2019: Trial of intervention open to recruitment
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February 2020: IBD-BOOST Optimise open to recruitment
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June 2021: All studies to finish Recruitment
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June 2022: All follow-up to finish.
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November 2022: Final report to be published