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Understanding Factors that Influence End-of-Life Decisions in Older Adults with Dementia


The aim of this research project is to learn more about the care received by older adults with dementia at the end of their lives. We hope that the findings will help us improve hospital and community care systems and cultures so that people with dementia receive appropriate care in the last stages of their lives, in line with their preferences, goals and values.  

To achieve this, we aim to answer the following research questions:

  1. What are the systems-level factors that contribute to burdensome end-of-life care in older adults with dementia?
  2. What are the experiences of carers and health care professionals of potentially burdensome care near the end of life for people with dementia?
  3. What are the promotors and inhibitors of burdensome end of life care at a systems level?
  4. What are the modifiable systems-level factors associated with burdensome end of life care?



This is a qualitative research project that involves interviewing carers and health care professionals to hear about their first-hand experiences of dementia care towards the end of life. 

Our Partners

Global Brain Health Institute

Global Brain Health Institute (GBHI)

Atlantic Fellows.

Atlantic Fellowship for Equity in Brain Health

Alzheimer's Society.

Alzheimer's Society

Project status: Ongoing

Principal Investigator