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The Children’s Palliative Care Outcome Scale (C-POS) study: findings and innovations
Lucy Coombes and Dr Debbie Braybrook will present the research studies completed so far for the development of the UK Children’s Palliative Outcome Scale. Results of one of the largest studies exploring symptoms, concerns and care priorities of children with a range of life-limiting conditions from multiple stakeholder perspectives will be presented: 106 qualitative interviews, including 39 children and young people. In addition, results of a Delphi survey to inform items to be included in C-POS and results of cognitive testing of the measure will be presented. They will highlight lessons about engaging children with life-limiting conditions in research, and patient and public involvement.
About the speakers
Lucy Coombes is a Clinical Nurse Specialist in paediatric palliative care at the Royal Marsden Hospital, London. She is also undertaking her PhD at the Cicely Saunders Institute, King’s College London.
Dr Debbie Braybrook is a Research Associate within the Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation.
About the seminar series
The Cicely Saunders Institute Open Seminar Series events are free to attend.
This seminar is worth CPD (1 credit) pending from the Royal College of Physicians.
The series aim is to optimise opportunities for local, national and international networking within palliative care and rehabilitation. We facilitate seminars to assist in improving practice, education and policy, and the integration of research and clinical endeavours.