Skip to main content

The Dementia in Intellectual Disabilities Special Interest Group (DID-SIG) is an independent group composed of clinicians (including clinical psychologists, psychiatrists, occupational therapists and nurses) from across the UK and beyond who have a special interest in dementia in people with intellectual disabilities. 

The group - which is chaired by Dr Andre Strydom, Professor of Intellectual Disabilities and Consultant Psychiatrist - meets quarterly to discuss research, clinical cases and policy relevant to people who have intellectual disabilities and dementia. 

Clinical guidance on dementia in intellectual disabilities we have developed 

Publications from the ADSID registry of dementia in Down syndrome 

Using data pooled from our dementia clinics, we have explored clinical questions about reliability of dementia diagnoses, predictors of age of diagnosis and survival of Alzheimer’s disease, and impact of treatment with cholinesterase inhibitors in adults with Down syndrome.  

Care pathways and service innovations   

Management and provision of post-diagnostic support for dementia in individuals with intellectual disabilities requires complex input and service models – see below for examples of care pathways and service innovations developed by the group. 

Joint GSTT and SLaM Down Syndrome and Intellectual Disabilities Dementia Pathway  

Some useful resources 

Resources for carers 

Resources for people with intellectual disabilities 

Resources for professionals