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Health

The IBD-BOOST Survey

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What is the IBD-BOOST Survey?

The IBD-BOOST Survey aims to describe the inter-relationship of the symptoms associated with Inflammatory Bowel Disease (IBD) of urgency, fatigue and pain, their prevalence and associations with quality of life, depression, anxiety, disease activity, disease history and demographic and lifestyle factors.

 

Who can take part?

This study is open to people over 18 who live in England, Scotland or Wales and have a diagnosis of Crohn’s disease, ulcerative colitis or another type of IBD.  

Participating in the survey is by invitation from a participating NHS hospitals, the IBD-BIoresource or Crohns and Colitis UK to their members.

 

Accessing the IBD-BOOST survey 

If you have received an invitation to the IBD-BOOST survey and have been unable to access it, the following link will take you to it:

https://trials2.pctu.qmul.ac.uk/surveys/

Your invitation will have an access code. Please enter this to access the survey. Without an access code you will not be able to access the survey. Taking part in the survey is currently by invitation only from participating NHS hospitals as well as CCUK and the IBD-BioResource.

 

Which NHS Trusts are taking part?

The following hospitals are currently open to recruitment to this study:

  • Barnsley Hospital NHS Foundation Trust (Barnsley Hospital)
  • Blackpool Teaching Hospitals NHS Foundation Trust (Blackpool Victoria Hospital)
  • Cambridge University Hospitals NHS Foundation Trust (Addenbrooke’s Hospital)
  • Chelsea and Westminster Hospital NHS Foundation Trust (Chelsea and Westminster Hospital)
  • Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust (Doncaster Royal Infirmary or Mexborough Montague Hospital or Bassetlaw District Hospital)
  • Dorset County Hospital NHS Foundation Trust (Dorset County Hospital)
  • Hull University Teaching Hospitals NHS Trust (Hull Royal Infirmary or Castle Hill Hospital)
  • London North West University Hospital NHS Trust (St Mark’s Hospital & Ealing Hospital)
  • NHS Mid and South Essex University Hospitals Group (Broomfield Hospital)
  • The Queen Elizabeth Hospital King’s Lynn NHS Foundation Trust (The Queen Elizabeth Hospital, King’s Lynn)
  • The Rotherham NHS Foundation Trust (Rotherham Hospital)
  • Royal Cornwall Hospitals NHS Trust (Royal Cornwall Hospital)
  • Salford Royal (Salford Hospital)
  • Sheffield Teaching Hospitals NHS Foundation Trust (Royal Hallamshire Hospital)
  • St Helens and Knowsley Teaching Hospitals NHS Trust (Whiston Hospital)
  • Torbay and South Devon NHS Foundation Trust (Torbay Hospital)
  • United Lincolnshire Hospitals NHS Trust (Lincoln County Hospital or Louth Hospital or Grantham Hospital)
  • Warrington and Halton Hospitals NHS Foundation Trust (Warrington Hospital or Halton General Hospital)

More NHS Hospitals will be open soon!

 

What organisations are involved?

King’s College London (KCL) and the Pragmatic Clinical trials Unit (PCTU) Queen Mary University of London are working in partnership with London North West University Healthcare NHS Trust (LNWUH). LNWUH is the sponsor for this study based in the United Kingdom.

 

Key Dates

  • September 2018: Study received ethics approval
  • February 2019: Recruitment open.
  • June 2021: Recruitment to close
  • November 2022: Final report to be published

 

Who is organising and funding the research?

Professor Christine Norton is leading an experienced team of doctors, nurses and researchers. The survey is being funded as part of the IBD-BOOST Programme by the National Institute of Health Research (NIHR) through their Programme Grants for Applied Research.

 

Who has reviewed this research?

The IBD-BOOST Survey has been reviewed and given favourable opinion by North West - Greater Manchester West Research Ethics Committee (Reference: 18/NW/0613) and has approval from the Health Research Authority.

 

Project status: Ongoing

Principal investigators

Christine Norton

Christine Norton

Professor of Clinical Nursing Research

Funding

  • Funding body: National Institute for Health Research
  • Amount: £2.3 Million
  • Period: November 2017 - October 2022

Project website

Contact

IBD-BOOST
Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care
King's College London
James Clerk Maxwell Building
57 Waterloo Road,
London,
SE1 8WA