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The IBD-BOOST Survey


Do you have IBD? Please complete the IBD-BOOST Survey! By telling us how IBD impacts you, you could help us develop better ways to manage symptoms of IBD. It doesn't matter what symptoms you do or don't have, we want to hear everyone's experiences.

What is the IBD-BOOST Survey?

The IBD-BOOST Survey aims to describe the inter-relationship of the symptoms associated with Inflammatory Bowel Disease (IBD) of urgency, fatigue and pain, their prevalence and associations with quality of life, depression, anxiety, disease activity, disease history and demographic and lifestyle factors.

Who can take part?

This study is open to people over 18 who live in England, Scotland or Wales and have a diagnosis of Crohn’s disease, ulcerative colitis or another type of IBD.  

Participating in the survey is by invitation from a participating NHS hospital, the IBD-BIoresource or Crohns and Colitis UK to their members.

Which NHS Trusts are taking part?

The following hospitals are currently open to recruitment for this study:

  • Barnsley Hospital NHS Foundation Trust (Barnsley Hospital)
  • Blackpool Teaching Hospitals NHS Foundation Trust (Blackpool Victoria Hospital)
  • Cambridge University Hospitals NHS Foundation Trust (Addenbrooke’s Hospital)
  • Chelsea and Westminster Hospital NHS Foundation Trust (Chelsea and Westminster Hospital)
  • Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust (Doncaster Royal Infirmary or Mexborough Montague Hospital or Bassetlaw District Hospital)
  • Dorset County Hospital NHS Foundation Trust (Dorset County Hospital)
  • Hull University Teaching Hospitals NHS Trust (Hull Royal Infirmary or Castle Hill Hospital)
  • London North West University Hospital NHS Trust (St Mark’s Hospital & Ealing Hospital)
  • NHS Mid and South Essex University Hospitals Group (Broomfield Hospital)
  • The Queen Elizabeth Hospital King’s Lynn NHS Foundation Trust (The Queen Elizabeth Hospital, King’s Lynn)
  • The Rotherham NHS Foundation Trust (Rotherham Hospital)
  • Royal Cornwall Hospitals NHS Trust (Royal Cornwall Hospital)
  • Salford Royal (Salford Hospital)
  • Sheffield Teaching Hospitals NHS Foundation Trust (Royal Hallamshire Hospital)
  • St Helens and Knowsley Teaching Hospitals NHS Trust (Whiston Hospital)
  • Torbay and South Devon NHS Foundation Trust (Torbay Hospital)
  • United Lincolnshire Hospitals NHS Trust (Lincoln County Hospital or Louth Hospital or Grantham Hospital)
  • Warrington and Halton Hospitals NHS Foundation Trust (Warrington Hospital or Halton General Hospital)

More NHS Hospitals will be open soon!


What organisations are involved?

King’s College London (KCL) and the Pragmatic Clinical trials Unit (PCTU) at the Queen Mary University of London are working in partnership with London North West University Healthcare NHS Trust (LNWUH). LNWUH is the sponsor for this study based in the United Kingdom.


Key Dates

  • September 2018: The study received ethics approval
  • February 2019: Recruitment open
  • July 2022: Recruitment to close
  • November 2023: Final report to be published


Who is organising and funding the research?

Professor Christine Norton is leading an experienced team of doctors, nurses and researchers. The survey is being funded as part of the IBD-BOOST Programme by the National Institute of Health Research (NIHR) through their Programme Grants for Applied Research.


Who has reviewed this research?

The IBD-BOOST Survey has been reviewed and given favourable opinion by North West - Greater Manchester West Research Ethics Committee (Reference: 18/NW/0613) and has approval from the Health Research Authority.


Project status: Ongoing

Principal Investigator

Project websites


Funding Body: National Institute for Health Research

Amount: £2.3 Million

Period: November 2017 - October 2022

Contact us

Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care
King's College London
James Clerk Maxwell Building
57 Waterloo Road,