Learning from Lives and Deaths - people with a learning disability and autistic people (LeDeR)

The LeDeR programme, funded by NHS England and NHS Improvement, was established in 2017 to improve healthcare for people with a learning disability and autistic people. LeDeR aims to:

 Improve care for people with a learning disability and autistic people.

• Reduce health inequalities for people with a learning disability and autistic people.
• Prevent people with a learning disability and autistic people from early deaths.

LeDeR summarises the lives and deaths of people with a learning disability and autistic people who died in England in annual reports. The 2021 reports were made by researchers at King’s College London collaborating with academic partners at the University of Central Lancashire and Kingston University London, copies of which can be found below. Accessible versions, including a video summary of the findings, are available below, as are key “TakeHome” posters.

 LeDeR Report 2021

• LeDeR Report 2021 - Main Report
• LeDeR report 2021 - Appendix
• LeDeR Report 2021 - Latest TakeHome facts (Infographic format)

LeDeR Report 2021 - Easy Read and videos

• LeDeR Report 2021 - Easy Read
• LeDeR Report 2021 - Easy Read PowerPoint
• LeDeR Report 2021 - Easy Video (Full Report)

LeDeR Report 2021 - Easy video chapter links

• The Orange Part - Could more people with a learning disability have lived longer? 
• The Grey Part - What can we say about people with a learning disability who died in England in 2021?  
• The Blue Part - How good was the care for people with a learning disability who died in 2021? 
• The Yellow Part - What did people with a learning disability die of in 2021?
• The Green Part - Which people with a learning disability were more likely to die younger? 
• The Pink Part - How did COVID-19 affect people with a learning disability? 

What is LeDeR?

Partners
The main report and the accessible versions were produced in conjunction with our academic and community partners: The University of Central Lancashire, Kingston University London, Staying Alive and Well, Foundation for people with learning disabilities, Pathways Associates and the Estia Centre. More detail on the LeDeR report can be found at www.leder.nhs.uk/about

• NHS LeDeR:  www.leder.nhs.uk/about
• University of Central Lancashire:  www.uclan.ac.uk/research/activity/mackenzie-clinical-research-institute
• Kingston University London:  Learning Disabilities (LD) - Research - Kingston University London