The Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) programme, funded by NHS England and NHS Improvement, was established in 2017 to improve healthcare for people with a learning disability and autistic people. LeDeR aims to:
- Improve care for people with a learning disability and autistic people.
- Reduce health inequalities for people with a learning disability and autistic people.
- Prevent people with a learning disability and autistic people from early deaths.
LeDeR summarises the lives and deaths of people with a learning disability and autistic people who died in England in annual reports. The 2021 and 2022 reports are made by researchers at King’s College London collaborating with academic partners at the University of Lancashire and Kingston University London, copies of which can be found below. Accessible versions, including a video summary of the findings are available, as are key “TakeHome” posters.
A statement from the team about the 2022 report is available here.
For previous years' reports, please see the tab "Previous years reports" at the bottom of this page. Please see the tab "Publications" for "Deep Dive" reports, and publications.
LeDeR Report 2022 (published November 2023)
- LeDeR Report 2022 - Main Report
- LeDeR report 2022 - Appendix
- LeDeR Report 2022 - Latest TakeHome facts (Infographic format)
LeDeR Report 2022 - Easy read and videos
- LeDeR Report 2022 - Easy Read Video Foreword
- LeDeR Report 2022 - Easy Video (Full Report)
- LeDeR Report 2022 - Easy Read version
- LeDeR Report 2022 - Easy Read PowerPoint Presentation
What is LeDeR?
People
Professor of Medical Statistics
Research Assistant
Senior Clinical Lecturer
Professor in Intellectual Disabilities
Research Associate
Post-Doctoral Research Associate
Publications
Published and other work
Not Attempt Cardiopulmonary (DNACPR): Recommendations for People with a Learning Disability – Coming Soon
Barriers to Vaccination Deep Dive – Coming Soon
Onset and Care of Type 2 Diabetes Mellitus in People with a Learning Disability
The LeDeR team has contributed to the further development of MediChec app to ensure safer prescribing in people with learning disabilities developed by the NIHR Maudsley BRC. The MediChec app is available online.
Deep dives
Barriers to Vaccination Deep Dive – Coming Soon
Onset and Care of Type 2 Diabetes Mellitus in People with a Learning Disability
Deaths Due to Pneumonia in People with a Learning Disability
Avoidable Deaths from Cancer for People with a Learning Disability - Coming Soon
The Causes and Impact of Cardiovascular Disease in Adults with a Learning Disability
Genetic Deep Dive - Coming Soon
Research digests
Summer 2024: Focus on General Issues
Spring 2024: Focus on Cardiovascular Disease
Autumn 2023: Focus on Pneumonia
Previous KCL LeDeR Reports
LeDeR Report 2021 (Published July 2022)
- LeDeR Report 2021 - Main Report
- LeDeR report 2021 - Appendix
- LeDeR Report 2021 - Latest TakeHome facts (Infographic format)
LeDeR Report 2021 - Easy Read and videos
LeDeR Report 2021 - Easy video chapter links
- The Orange Part - Could more people with a learning disability have lived longer?
- The Grey Part - What can we say about people with a learning disability who died in England in 2021?
- The Blue Part - How good was the care for people with a learning disability who died in 2021?
- The Yellow Part - What did people with a learning disability die of in 2021?
- The Green Part - Which people with a learning disability were more likely to die younger?
- The Pink Part - How did COVID-19 affect people with a learning disability?
People
Professor of Medical Statistics
Research Assistant
Senior Clinical Lecturer
Professor in Intellectual Disabilities
Research Associate
Post-Doctoral Research Associate
Publications
Published and other work
Not Attempt Cardiopulmonary (DNACPR): Recommendations for People with a Learning Disability – Coming Soon
Barriers to Vaccination Deep Dive – Coming Soon
Onset and Care of Type 2 Diabetes Mellitus in People with a Learning Disability
The LeDeR team has contributed to the further development of MediChec app to ensure safer prescribing in people with learning disabilities developed by the NIHR Maudsley BRC. The MediChec app is available online.
Deep dives
Barriers to Vaccination Deep Dive – Coming Soon
Onset and Care of Type 2 Diabetes Mellitus in People with a Learning Disability
Deaths Due to Pneumonia in People with a Learning Disability
Avoidable Deaths from Cancer for People with a Learning Disability - Coming Soon
The Causes and Impact of Cardiovascular Disease in Adults with a Learning Disability
Genetic Deep Dive - Coming Soon
Research digests
Summer 2024: Focus on General Issues
Spring 2024: Focus on Cardiovascular Disease
Autumn 2023: Focus on Pneumonia
Previous KCL LeDeR Reports
LeDeR Report 2021 (Published July 2022)
- LeDeR Report 2021 - Main Report
- LeDeR report 2021 - Appendix
- LeDeR Report 2021 - Latest TakeHome facts (Infographic format)
LeDeR Report 2021 - Easy Read and videos
LeDeR Report 2021 - Easy video chapter links
- The Orange Part - Could more people with a learning disability have lived longer?
- The Grey Part - What can we say about people with a learning disability who died in England in 2021?
- The Blue Part - How good was the care for people with a learning disability who died in 2021?
- The Yellow Part - What did people with a learning disability die of in 2021?
- The Green Part - Which people with a learning disability were more likely to die younger?
- The Pink Part - How did COVID-19 affect people with a learning disability?
Our Partners
The main report and the accessible versions were produced in conjunction with our academic and community partners: The University of Central Lancashire, Kingston University London, Staying Alive and Well, Foundation for people with learning disabilities, Pathways Associates and the Estia Centre. More detail on the LeDeR report can be found on the NHS website.
Group leads
Professor in Intellectual Disabilities
Senior Clinical Lecturer
Post-Doctoral Research Associate