Our three main results papers are shown in bold, with the 19 other publications from IBD-BOOST also listed below. Open access links are given for each paper:

Fatigue, pain and faecal incontinence in adult inflammatory bowel disease patients and the unmet need: a national cross -sectional survey. Hart et al 2024. BMC Gastroenterology. Open access version available from the journal:

doi: 10.1186/s12876-024-03570-8

Optimising fatigue, abdominal pain, and faecal incontinence in people with Inflammatory Bowel Disease. Feasibility study of a checklist and algorithm for initial nurse-led management: the IBD-BOOST Optimise study. Stagg et al 2024. BMJ Open Gastroenterology. Open access version available from the journal:

http://dx.doi.org/10.1136/bmjgast-2024-001585

Digital cognitive behavioural self-management programme for fatigue, pain and faecal incontinence in inflammatory bowel disease: the IBD-BOOST randomised controlled trial. Moss Morris, Norton et al 2025. Lancet Digital Health. Open access version available from the journal:

https: //doi.org/10.1016/j.landig.2025.100906

Patient strategies for managing the vicious cycle of fatigue, pain and urgency in Inflammatory Bowel Disease: impact, planning and support. Dibley et al 2021. Digestive Diseases and Sciences. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/patient-strategies-for-managing-the-vicious-cycle-of-fatigue-pain

Developing an online program for self‑management of fatigue, pain, and urgency in Inflammatory Bowel Disease: patients’ needs and wants. Fawson et al 2022. Digestive Diseases and Sciences. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/developing-an-online-programme-for-self-management-of-fatigue-pai

Inflammatory bowel disease nurses’ views on taking on a new role to support an online self-management programme for symptoms of fatigue, pain and urgency: a qualitative study to maximise intervention acceptance. Matthias et al 2021. Gastrointestinal Nursing. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/inflammatory-bowel-disease-nurses-views-on-taking-on-a-new-role-t

Targets for interventions for faecal incontinence in inflammatory bowel disease: a systematic review. Proudfoot et al 2018. Scandinavian Journal of Gastroenterology. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/targets-for-interventions-for-faecal-incontinence-in-inflammatory

A Novel Digital Self-management Intervention for Symptoms of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease: Describing the Process of Development. Sweeney et al 2022. Journal of Medical Internet Research – Formative Research. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/a-novel-digital-self-management-intervention-for-symptoms-of-fati

Pain management in inflammatory bowel disease: feasibility of an online therapist supported CBT-based self-management intervention. Sweeney et al 2021. Pilot and Feasibility Studies. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/pain-management-in-inflammatory-bowel-disease-feasibility-of-an-o

Development and test–retest reliability of a new, self-report questionnaire assessing healthcare use and personal costs in people with inflammatory bowel disease: the Inflammatory Bowel Disease Resource Use Questionnaire (IBD-RUQ). Roukas et al 2022. Frontline Gastroenterology. Open access version available at:

https://kclpure.kcl.ac.uk/portal/en/publications/development-and-test-retest-reliability-of-a-new-self-report-ques

Impact of fatigue, pain, and bowel incontinence on the quality of life of people living with Inflammatory Bowel Disease: a UK cross-sectional survey. Roukas et al 2024. United European Gastroenterology Journal. Open access version available from the journal:

doi: 10.1002/ueg2.12668

Supported online self-management versus care as usual for symptoms of fatigue, pain and urgency/incontinence in adults with inflammatory bowel disease (IBD-BOOST): study protocol for a randomised controlled trial. Norton et al 2021. Trials. Open access version available from the journal:

https://doi.org/10.1186/s13063-021-05466-4

Economic evaluation of the IBD-BOOST trial. Roukas et al: not yet published.

Process evaluation findings contradict RCT results of the IBD-BOOST digital self-management intervention for fatigue, pain and faecal urgency in inflammatory bowel disease: A mixed methods study of patient perspectives. Czuber-Dochan et al 2025. British Journal of Health Psychology. Open access version available from the journal:

DOI: 10.1111/bjhp.70035

Supporting patients using a digital self-management Intervention for symptoms of fatigue, pain, and urgency/incontinence in Inflammatory Bowel Disease: a mixed methods process evaluation of trial facilitators. Wileman et al. Paper not yet published.

What is the impact on recruitment of a shortened compared with a standard-length participant information leaflet? PROMETHEUS in IBD BOOST: Study Within a Trial (SWAT), a Decentralised Randomised Controlled Trial. Miller et al 2025. Trials. Open access version available from the journal:

doi.org/10.1186/s13063-025-08931-6

The impact of COVID-19 on trial participants’ engagement with IBD-BOOST: a digital cognitive behavioural intervention. Honzlova et al 2024. Gastrointestinal Nursing. Open access version available from the journal:

Doi: 10.12968/gasn.2024.22.2.114

Development and preliminary evaluation of a suicidal risk assessment protocol in a randomised controlled trial using the Patient Health Questionnaire (PHQ‑9). Wileman et al 2024. Open access version available from the journal:

https://doi.org/10.1186/s13063-024-08276-6

Modifiable psychological factors are associated with symptom clusters of pain, fatigue and faecal incontinence in inflammatory bowel disease: a latent profile analysis. Wileman et al 2024. Journal of Crohn’s & Colitis. Open access version available from the journal:

https://doi.org/10.1093/ecco-jcc/jjae183

The relationships between depression, inflammation and self-reported IBD activity and their impact on healthcare usage. Seaton et al 2025. BMC Gastroenterology. Open access version available from the journal:

https://doi.org/10.1186/s12876-025-03691-8

Chronic abdominal pain in inflammatory bowel disease - a practical guide. Baillie et al 2024. Frontline Gastroenterology. Open access version available from:

https://kclpure.kcl.ac.uk/portal/en/publications/chronic-abdominal-pain-in-inflammatory-bowel-disease-a-practical-

What did we learn from the IBD-BOOST research programme? Norton 2025. Gastrointestinal Nursing. Open access version available from:

https://kclpure.kcl.ac.uk/portal/en/publications/what-did-we-learn-from-the-ibd-boost-research-programme/

Dr Sally Kerry

Based in