Finding a Safe Space
Before joining the D-Stress Study, Tracy had never been involved in diabetes research. She’d attended a few workshops focused on language in healthcare, but this felt more personal; and initially, it brought uncertainty.
“I’m not type 1 diabetic, which all my peers are, and I worried that it might feel heavy for people with type 1 to hear. Like, ‘look what could happen.’”
Instead of resistance, Tracy was met with warmth and care.
“The reception to Dayle’s, and my, story, has been amazing. Others empathy and acceptance empowers me to speak.”
Tracy describes the Patient Forum not as a research group, but as a space of mutual understanding and support.
“Everyone just gets it. I used to think Dayle’s experiences, and mine, were unique. But they’re not. That’s where the mutual compassion, and passion to make changes comes in.”
Feeling heard and validated has given Tracy the strength to continue contributing.
“I feel accepted. I feel privileged to be part of a group who are so passionate about making real changes.”
Being part of the D-Stress group has brought powerful emotional moments, and a sense of connection Tracy didn’t expect.
“Sometimes I’ve got so much I need to ask and to express, things I need to get out. And everyone is really accepting of that. They recognise it and understand.”
What advice would you give to patients and public thinking about getting involved in research?
For anyone unsure about taking part in research, especially those carrying grief, Tracy’s advice is simple and sincere:
“Do it. Try it. It’s been massively therapeutic for me. At first, I wondered, should I be doing this? Is it too soon after Dayle’s death? Will it be too much for me? But there’s no doubt now, this is what I need to do.”
“I can’t help Dayle anymore, but I can speak, and be heard, on his behalf.”
Tracy’s words, her courage, and her presence in this research are already making a difference. They remind us that compassionate care isn’t a luxury, it’s essential, and that behind every condition, there’s a human story that deserves to be heard.
By sharing Dayle’s story, Tracy is helping to shape a better, more emotionally aware future for diabetes care. One where no one feels alone in their struggle. One where distress is recognised, and compassion is routine.
What advice would you give to researchers who want to involve patients and public?
“Give people a voice, there cannot be any hierarchy in lived experiences, these are people’s lives.”