Haemoglobinopathies: Advancing Client Centred Care Level 7 7KNIN313

This course has been framed with the RCN competencies 'Caring for people with sickle cell disease and thalassaemia syndromes' which is endorsed by the NHS Sickle Cell & Thalassaemia Screening Programme.  It aims to develop critically reflective practitioners, enhancing their abilities in promoting and providing client centred care in a variety of settings to people with, or at risk of, a haemoglobinopathy.  The course will cover aetiology, epidemiology and pathophysiology of the haemoglobinopathies, psychology, health promotion and a review of health and social policies.

This course aims to integrate and apply knowledge of theoretical frameworks from a variety of disciplines. These include biological and social sciences, nursing/midwifery and health sciences to care for individuals, families and communities with or at risk of haemoglobinopathies.

Finally, it is expected that the course will develop a practitioner capable of empowering clients through education, counselling and screening to make informed health and social choices. As well as one who can reflect on practice and factors that influence professional judgement, and subsequent action.

On successful completion of the module, the student will be able to:

1. Demonstrate a comprehensive knowledge and understanding of the aetiology, epidemiology and natural history of abnormal haemoglobins.
2. Systematically categorise populations at risk, modes of inheritance and potential health implications.
3. Identify, select and interpret laboratory tests available to detect carrier and disease state through a knowledge of the distribution of values in the target population with an understanding of the importance of first trimester screening and diagnosis.
4. Examine and determine the sociological and psychological and biological determinants of health and illness as experienced by the client/patient.
5. Interpret the heath care needs of patients receiving specialist haemoglobinopathy treatment; including the use of early warning tools to identify the patient's changing and deteriorating condition, and take appropriate action
6. Translate relevant health and social policies, examine political philosophies and identify their impact on health and social care service provisions
7. Critically appraise research findings for validity, impact, and applicability, and draw on clinical expertise to integrate this knowledge with client information.
8. Critically appraise their role in promoting the health of clients/patients with or at risk of a haemoglobinopathies.
9. Identify and facilitate ways of increasing the child, adult and their carers? participation in their care and service development working with the patient (and their family/carers) as an expert in their own condition
10. Consider population diversity and health inequality and apply culturally competent approaches based on cultural respect frameworks in order to work collaboratively with clients and their families.
11. Collaborate and contribute as part of a multidisciplinary team. This includes undertaking assessment and follow up with appropriate action, including referral to medical specialists for relevant chronic health care conditions.
12. Evaluate their perception of their role, re-examine their professional practices and competencies in relation to the client group; in order to actively improve and promote services across the care pathway.

Qualified healthcare professionals

Portfolio ( level 6 3000 words and level 7 3500 words)

Term 2 -

20/02/2024, 27/02, 05/03, 12/03, 19/03, 26/03