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The Learning from Lives and Deaths - people with a learning disability and autistic people (LeDeR) programme, funded by NHS England and NHS Improvement, was established in 2017 to improve healthcare for people with a learning disability and autistic people. LeDeR aims to:

  • Improve care for people with a learning disability and autistic people.
  • Reduce health inequalities for people with a learning disability and autistic people.
  • Prevent people with a learning disability and autistic people from early deaths.

LeDeR summarises the lives and deaths of people with a learning disability and autistic people who died in England in annual reports. The 2021 and 2022 reports are made by researchers at King’s College London collaborating with academic partners at the University of Central Lancashire and Kingston University London, copies of which can be found below. Accessible versions, including a video summary of the findings are available, as are key “TakeHome” posters.

A statement from the team about the 2022 report is available here.

For previous years' KCL reports, please see the tab "Previous years reports" at the bottom of this page. Please see the tab "Publications" for "Deep Dive" reports, and publications. 

 LeDeR Report 2022 (published November 2023)

LeDeR Report 2022 - Easy read and videos

What is LeDeR?

People

Ben Carter

Professor of Medical Statistics

Jonathon Ding

Research Assistant

Senior Clinical Lecturer

André Strydom

Professor in Intellectual Disabilities

Adam White

Research Associate

Michael Kwan Leung Yu

Post-Doctoral Research Associate

Publications

Published Work   

Specialist Intellectual Disability Liaison Nurses in General Hospitals in England: Cohort Study Using a Large Mortality Datasets 

Constipation Prevalence and Risk from Prescribed Medications in People with Intellectual Disability: Findings from and English Mortality Programme 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Deep Dives

Bowel Cancer in People with a Learning Disability: An International Comparison and Discussion of Lowering the Age of Screening based on LeDeR Data

Onset and Care of Type 2 Diabetes Mellitus in People with a Learning Disability

Premature Death, the Side Effects of Medications, and the use of Laxative, for People with a Learning Disability in England

Constipation - Key Findings of Premature death, the side effects of medications, and the use of laxatives, for people with a learning disability in England.

Children and Young People - Restraint in Psychiatric Hospitals in England, Scotland, Germany, Canada, and the US

Deaths Due to Pneumonia in People with a Learning Disability 

Do Not Attempt Cardiopulmonary (DNACPR): Recommendations for People with a Learning Disability - Coming Soon

Avoidable Deaths from Cancer for People with a Learning Disability - Coming Soon

The Causes and Impact of Cardiovascular Disease in Adults with a Learning Disability

Genetic Deep Dive  - Coming Soon     

 

Research Digests

Summer 2024: Focus on General Issues

Spring  2024:  Focus  on  Cardiovascular  Disease

Autumn 2023: Focus on Pneumonia

Summer 2023: Focus on Constipation

Spring 2023: Focus on Autism 

Winter 2022: General Research

Summer 2022: General Research                                                                    

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

People

Ben Carter

Professor of Medical Statistics

Jonathon Ding

Research Assistant

Senior Clinical Lecturer

André Strydom

Professor in Intellectual Disabilities

Adam White

Research Associate

Michael Kwan Leung Yu

Post-Doctoral Research Associate

Publications

Published Work   

Specialist Intellectual Disability Liaison Nurses in General Hospitals in England: Cohort Study Using a Large Mortality Datasets 

Constipation Prevalence and Risk from Prescribed Medications in People with Intellectual Disability: Findings from and English Mortality Programme 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Deep Dives

Bowel Cancer in People with a Learning Disability: An International Comparison and Discussion of Lowering the Age of Screening based on LeDeR Data

Onset and Care of Type 2 Diabetes Mellitus in People with a Learning Disability

Premature Death, the Side Effects of Medications, and the use of Laxative, for People with a Learning Disability in England

Constipation - Key Findings of Premature death, the side effects of medications, and the use of laxatives, for people with a learning disability in England.

Children and Young People - Restraint in Psychiatric Hospitals in England, Scotland, Germany, Canada, and the US

Deaths Due to Pneumonia in People with a Learning Disability 

Do Not Attempt Cardiopulmonary (DNACPR): Recommendations for People with a Learning Disability - Coming Soon

Avoidable Deaths from Cancer for People with a Learning Disability - Coming Soon

The Causes and Impact of Cardiovascular Disease in Adults with a Learning Disability

Genetic Deep Dive  - Coming Soon     

 

Research Digests

Summer 2024: Focus on General Issues

Spring  2024:  Focus  on  Cardiovascular  Disease

Autumn 2023: Focus on Pneumonia

Summer 2023: Focus on Constipation

Spring 2023: Focus on Autism 

Winter 2022: General Research

Summer 2022: General Research                                                                    

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Previous KCL LeDeR Reports

Our Partners

The main report and the accessible versions were produced in conjunction with our academic and community partners: The University of Central Lancashire, Kingston University London, Staying Alive and Well, Foundation for people with learning disabilities, Pathways Associates and the Estia Centre. More detail on the LeDeR report can be found at www.leder.nhs.uk/about

University of Central Lancashire

University of Central Lancashire

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NHS England

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